07 Oct
  • By leilanifera
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CureDuchenne to Host a Webinar on Duplication Research for Duchenne with Dr. Flanigan From Nationwide Children’s Hospital on October 12

NEWPORT BEACH, Calif., October 7, 2016: CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with Dr. Kevin Flanigan from Nationwide Children’s Hospital on October 12 at 4 p.m. ET/ 1 p.m. PT. The webinar is an opportunity for the Duchenne community to learn the […]

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06 Oct
  • By L Fera
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CureDuchenne To Host SareptAssist Webinar on October 11 to Provide an Overview of Sarepta’s Patient Support Program for Duchenne Families

NEWPORT BEACH, CA. October 6, 2016 – CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with Sarepta Therapeutics, Inc. (NASDAQ: SRPT) on October 11 at 1 p.m. ET/10 a.m. PT to provide the Duchenne community an overview of Sarepta’s patient support program, SareptAssist. The […]

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05 Oct
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Dealing for Duchenne Charity Casino Night Brings Together Cambridge Business Leaders to Benefit Lives of Those Living with Duchenne Muscular Dystrophy

CAMBRIDGE, MASS., October 5, 2016 – CureDuchenne and Art In Giving announced they are co-hosting Dealing for Duchenne in Cambridge on October 20 in the heart of Kendall Square to help save the lives of those with Duchenne muscular dystrophy.  Cambridge will turn vintage Vegas for a one-of-a-kind night of friendly competition in poker, blackjack, and […]

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04 Oct
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CureDuchenne Cares Hosts Inaugural Family Summit This October

Daylong Event Focuses on Care and Management for Duchenne Families NEWPORT BEACH, CA. October 4, 2016 – The inaugural CureDuchenne Cares Family Summit, a complimentary educational seminar for families who have loved ones with Duchenne muscular dystrophy, will take place on Saturday, October 22 at the Hyatt Regency in Garden Grove, California. The free of […]

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27 Sep
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San Antonio, Children with Duchenne Muscular Dystrophy Need Your Help

San Antonio, Texas, September 27, 2016 – CureDuchenne, a national non-profit, and local families have joined to raise funds for research and new treatments for children afflicted with Duchenne muscular dystrophy, the most devastating and fatal muscular disease in children. Help give these children a fighting chance by taking part in Dealing for Duchenne, a […]

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19 Sep
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CureDuchenne Celebrates FDA Approval of First Drug for Duchenne Muscular Dystrophy

Eteplirsen, Developed by Sarepta, Was Made Possible in Part by Early Funding from CureDuchenne NEWPORT BEACH, California, September 19, 2016 – CureDuchenne applauds the first-ever approval of a drug in the U.S. to treat Duchenne muscular dystrophy. The drug, Exondys 51 (eteplirsen), manufactured by Sarepta Therapeutics, Inc., received accelerated approval today from the Food and […]

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07 Sep
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CureDuchenne Receives Global Duchenne Muscular Dystrophy Patient Group Award

STRIVE Awards Program Recognizes Excellence and Innovation in the Duchenne Muscular Dystrophy Community NEWPORT BEACH, CA. September 7, 2016 – CureDuchenne is pleased to announce that on this World Duchenne Awareness Day, the organization has received one of the sought-after STRIVE Awards (Strategies to Realize Innovation, Vision and Empowerment), created by PTC Therapeutics, Inc. to […]

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31 Aug
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Anaheim Ducks Captain Ryan Getzlaf Raises $380,000 to Find a Cure for Duchenne Muscular Dystrophy at the 6th Annual Getzlaf Golf Shootout

Athletes, Celebrities and Community Leaders Tee Up to Support CureDuchenne NEWPORT BEACH, CA. August 31, 2016 – For the sixth year, the captain of the Anaheim Ducks Ryan Getzlaf and a team of professional athletes supported the 6th annual Getzlaf Golf Shootout, presented by ActivePDF, on August 26 and 27 to help CureDuchenne find a […]

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01 Aug
  • By leilanifera
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Bamboo Therapeutics Acquired by Pfizer Inc., Early Stage Investment by CureDuchenne Ventures, LLC Enabled Bamboo Therapeutics to Accelerate Development of a Gene Therapy for Duchenne Muscular Dystrophy

NEWPORT BEACH, Calif., Aug. 1, 2016 – Today, Pfizer Inc. announced its acquisition of Bamboo Therapeutics in a deal worth up to $645 million. Bamboo Therapeutics is an early-stage biotechnology company developing therapies for rare neuromuscular and central nervous system diseases. Seven months ago, CureDuchenne Ventures, LLC invested in Bamboo Therapeutics, giving the Raleigh, NC-based […]

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26 May
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CUREDUCHENNE CARES EXPANDS PHYSICAL THERAPY TRAINING SESSIONS

Celeste Graham, PT, and Doug Levine, PT, join Jennifer Wallace, PT and Director of the CureDuchenne Cares program, who initially developed the workshops and training sessions. Together these physical therapists will combine their years of experience with the common goal of creating a healthier future for Duchenne patients all over the country. “Duchenne is such […]

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