14 Jun
  • By Alicia Clough
  • Cause in

CureDuchenne to Host Webinar with Santhera Pharmaceuticals on SIDEROS Trial

NEWPORT BEACH, Calif., June 14, 2017 –  CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with Santhera Pharmaceuticals on June 22 at noon ET/9 a.m. PT.   Santhera will provide an update about the ongoing SIDEROS trial, which is a trial of their investigational candidate […]

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08 Jun
  • By Alicia Clough
  • Cause in

CureDuchenne Continues to Support Research for Duplication Mutations in Duchenne, and with Dr. Flanigan From Nationwide Children’s Hospital with a Coalition of Families Impacted by the Disease

NEWPORT BEACH, Calif., June 8, 2017: CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, continues to support Dr. Kevin Flanigan from Nationwide Children’s Hospital duplication 2 mutation research to find a treatment for a rare mutation of Duchenne.  CureDuchenne has funded more than $1 million to support this […]

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31 May
  • By Alicia Clough
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CD Access to Provide Special Access Program for Duchenne Muscular Dystrophy Patients in Canada

NEWPORT BEACH, Calif., May 31, 2017 –  CD Access is a new nonprofit that provides patients access to drugs and therapies that are currently unavailable through clinical trial or prescription. CD Access’ first program allows Duchenne muscular dystrophy patients in Canada that previously participated in a clinical trial for drisapersen to begin redosing through a […]

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15 May
  • By Alicia Clough
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CureDuchenne Support Duchenne Muscular Dystrophy Patients in Nepal

CureDuchenne firmly believes in working together to help any child with Duchenne muscular dystrophy find the support they need. Duchenne is a disorder which knows no cultural, economic, or social boundaries.  This fatal genetic muscle disease affects more than 300,000 children worldwide. Especially affected are muscular dystrophy patients in Nepal, as the region lacks resources […]

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04 May
  • By Alicia Clough
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Eighth Annual Champions to CureDuchenne Gala Raises More Than $378,000 Towards Finding a Cure for Duchenne Muscular Dystrophy

Austin, Texas, May 4, 2017 – On April 8, hundreds gathered at The University of Texas Golf Club for a common goal, raising awareness and funds to help CureDuchenne in its mission to find a cure for Duchenne muscular dystrophy, a fatal genetic disease. The eighth annual Champions to CureDuchenne, emceed by Jim Spencer, chief […]

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01 May
  • By Alicia Clough
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Anaheim Ducks Captain Ryan Getzlaf Supports CureDuchenne In 7th Annual Getzlaf Golf Shootout to Help Save Lives of Those with Duchenne

Newport Beach, Calif., May 1, 2017 –  Hitting a hole in one will feel twice as nice at the 7th Annual Getzlaf Golf Shootout, hosted by Anaheim Ducks Captain Ryan Getzlaf, because all funds raised will benefit CureDuchenne and their mission to find a cure for Duchenne muscular dystrophy. This year’s event will be held […]

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27 Mar
  • By Alicia Clough
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Leader in Cure, Care and Community for Duchenne Muscular Dystrophy CureDuchenne Launches New Website

NEWPORT BEACH, Calif., March 27, 2017 – CureDuchenne, the leading nonprofit focused on finding a cure for Duchenne muscular dystrophy, launched a new website today at www.CureDuchenne.org to further reflect its mission which focuses on improving and extending the lives of all those with Duchenne. Duchenne muscular dystrophy is a fatal genetic disorder that causes […]

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21 Mar
  • By Alicia Clough
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Eighth Annual Champions to CureDuchenne Gala Presented by Fired Up Charity Foundation To Be Held April 8 at The University of Texas Golf Club

(Austin, Texas) March 21, 2017 – Some champions are made on a field and some become champions by giving from the heart. On April 8, hundreds of champions committed to finding a cure for Duchenne muscular dystrophy will gather at The University of Texas Golf Club for the eighth annual Champions to CureDuchenne gala to […]

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14 Mar
  • By Alicia Clough
  • Cause in

Napa In Newport Raises $1 Million To Help Find a Cure for Duchenne Muscular Dystrophy

NEWPORT BEACH, Calif., March 14, 2017 – More than 400 people gathered at the Ritz-Carlton on Saturday, March 4 to enjoy the nectar of top Napa Valley wineries and help find a cure for Duchenne muscular dystrophy. The third annual Napa in Newport wine auction, powered by Karma, raised $1 million to support CureDuchenne’s mission […]

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