16 Jan
  • By leilanifera
  • Cause in

Champions to CureDuchenne Newport Beach Gala to Honor Scott and Lisa Niedermayer

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host its annual Champions to CureDuchenne Newport Beach Gala on Saturday, February 9 at the Balboa Bay Club & Resort. CureDuchenne will honor Scott and Lisa Niedermayer for their strong commitment to CureDuchenne over the years. Orange CountyÌ¢‰â‰ã¢s most prominent business and community leaders will be treated to a special dinner menu designed by Stan Frazier, former drummer for rock band Sugar Ray, co-owner of A Restaurant in Newport Beach and the most recent winner of Ì¢‰âÒChef Race.Ì¢‰âÂÌ_

READ MORE
03 Oct
  • By leilanifera
  • Cause in

Duchenne Muscular Dystrophy is Closer to a Treatment with New Results from Sarepta Therapeutics, Cure Duchenne Early Supporter of Study

Newport Beach, Calif., October 3, 2012: CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, is pleased by today’s announcement by Sarepta Therapeutics (formerly AVI  BioPharma) that its exon-skipping compound, eteplirsen, achieved significant clinical benefit after 48 weeks of treatment in a Phase IIb study in Duchenne […]

READ MORE
27 Sep
  • By leilanifera
  • Cause in

CureDuchenne Founder to Participate in Global Genes RARE Project Tribute to Champions Event, RARE Advocacy Summit and Documentary Screening

Newport Beach, Calif., SEPTEMBER 27, 2012:  CureDuchenne Founder, Debra Miller, will speak at the Global Genes | R.A.R.E. Project “Tribute to Champions of Hope” benefit and RARE Patient Advocacy Summit on September 27-28, 2012, in Newport Beach, Calif. CureDuchenne is a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular […]

READ MORE
05 Sep
  • By leilanifera
  • Cause in

Anaheim Ducks Captain Ryan Getzlaf to Host 2nd Annual Getzlaf Golf Shootout This Weekend To Benefit Cure Duchenne

Newport Beach, Calif., SEPTEMBER 5, 2012:  Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the second annual Getzlaf Golf Shootout on September 9 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Anaheim Ducks and Los Angeles Kings hockey players, celebrities and community leaders […]

READ MORE
19 Jun
  • By leilanifera
  • Cause in

Community Members to Climb Mt. Rubidoux in Riverside to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy

Community members will climb Mt. Rubidoux in Riverside on June 23 at 8 a.m. as part of the annual “Climb to CureDuchenne: Pick Your Peak” event happening nationwide. People across the country are climbing a mountain, hill or tall building to increase awareness and raise funds to find a cure for Duchenne muscular dystrophy. CureDuchenne, […]

READ MORE