14 Feb
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CureDuchenne Hosts Accelerateed Access Webinar with the FDA

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host a webinar on accelerated access for drug approvals with the Food and Drug Administration (FDA) on February 20, 2013 at 4 p.m. EST for Duchenne parents and advocates. Dr. Robert Temple, Deputy Center Director for Clinical Science, Center for Drug Evaluation and Research, FDA, will present and discuss expedited pathway programs, legislative initiatives and expanded access to investigational drugs. As the most common and lethal form of muscular dystrophy, Duchenne impacts 1 in 3,500 boys. There is currently no cure for Duchenne.

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14 Feb
  • By leilanifera
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CureDuchenne Hosts Accelerated Access Webinar with the FDA

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host a webinar on accelerated access for drug approvals with the Food and Drug Administration (FDA) on February 20, 2013 at 4 p.m. EST for Duchenne parents and advocates. Dr. Robert Temple, Deputy Center Director for Clinical Science, Center for Drug Evaluation and Research, FDA, will present and discuss expedited pathway programs, legislative initiatives and expanded access to investigational drugs. As the most common and lethal form of muscular dystrophy, Duchenne impacts 1 in 3,500 boys. There is currently no cure for Duchenne.

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14 Feb
  • By leilanifera
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Champions to CureDuchenne Newport Beach Gala Raises $800,000 to Find a Cure for Duchenne Muscular Dystrophy

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, held its annual Champions to CureDuchenne Newport Beach Gala on Saturday, February 9 at the Balboa Bay Club & Resort. The event raised almost $800,000 toward research to find a cure for Duchenne, a progressive muscle-wasting disease that impacts 1 in 3,500 boys.

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01 Feb
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Dallas Sports Celebrities Are Bowling to CureDuchenne to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host a Bowling to CureDuchenne fundraising event on February 10 at Lewisville Lanes in Lewisville, Texas. Sports celebrities from the Dallas Cowboys, Texas Rangers and an Olympic Champion including Rocket Ismail, Tony Banks, Larry Brown, Billy Joe DuPree, Jose Guzman, Pete Hunter, Robert Newhouse, Nate Newton, Carly Patterson, Drew Pearson, Preston Pearson, Jeff Russell, Don Stanhouse and Everson Walls will bowl with community members to benefit CureDuchenne.

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16 Jan
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Champions to CureDuchenne Newport Beach Gala to Honor Scott and Lisa Niedermayer

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host its annual Champions to CureDuchenne Newport Beach Gala on Saturday, February 9 at the Balboa Bay Club & Resort. CureDuchenne will honor Scott and Lisa Niedermayer for their strong commitment to CureDuchenne over the years. Orange CountyÌ¢‰â‰ã¢s most prominent business and community leaders will be treated to a special dinner menu designed by Stan Frazier, former drummer for rock band Sugar Ray, co-owner of A Restaurant in Newport Beach and the most recent winner of Ì¢‰âÒChef Race.Ì¢‰âÂÌ_

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03 Oct
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Duchenne Muscular Dystrophy is Closer to a Treatment with New Results from Sarepta Therapeutics, Cure Duchenne Early Supporter of Study

Newport Beach, Calif., October 3, 2012: CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, is pleased by today’s announcement by Sarepta Therapeutics (formerly AVI  BioPharma) that its exon-skipping compound, eteplirsen, achieved significant clinical benefit after 48 weeks of treatment in a Phase IIb study in Duchenne […]

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27 Sep
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CureDuchenne Founder to Participate in Global Genes RARE Project Tribute to Champions Event, RARE Advocacy Summit and Documentary Screening

Newport Beach, Calif., SEPTEMBER 27, 2012:  CureDuchenne Founder, Debra Miller, will speak at the Global Genes | R.A.R.E. Project “Tribute to Champions of Hope” benefit and RARE Patient Advocacy Summit on September 27-28, 2012, in Newport Beach, Calif. CureDuchenne is a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular […]

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05 Sep
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Anaheim Ducks Captain Ryan Getzlaf to Host 2nd Annual Getzlaf Golf Shootout This Weekend To Benefit Cure Duchenne

Newport Beach, Calif., SEPTEMBER 5, 2012:  Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the second annual Getzlaf Golf Shootout on September 9 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Anaheim Ducks and Los Angeles Kings hockey players, celebrities and community leaders […]

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15 Aug
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NHL All-Star Ryan Getzlaf to Host 2nd Annual Getzlaf Golf Shootout to Benefit CureDuchenne

Newport Beach, Calif., August 15, 2012:  Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the second annual Getzlaf Golf Shootout on September 9 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Gold medalist and NHL All-Star Getzlaf, along with Corey Perry, Anaheim Ducks; […]

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