20 Sep
  • By Karen Harley
  • Cause in

7th Annual Getzlaf Golf Shootout Raises More than $546,000 To Help Find a Cure for Duchenne Muscular Dystrophy

— Anaheim Ducks Captain Ryan Getzlaf and Wife Paige Getzlaf Continue their Support of CureDuchenne –  Newport Beach, CA (Sept. 20, 2017) – The 7th Annual Getzlaf Golf Shootout benefiting CureDuchenne raised more than $546,000 to help find a cure for Duchenne muscular dystrophy. Hosted by Anaheim Ducks Captain Ryan Getzlaf and his wife Paige, […]

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15 Jun
  • By Karen Harley
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RASRx Receives Orphan Drug Designation from FDA

NEWPORT BEACH, Calif., June 15, 2017 – RASRx announced today that the United States Food and Drug Administration (FDA) has granted an Orphan Drug Designation (ODD) for its compound RASRx1902 for the treatment of Duchenne Muscular Dystrophy.  RASRx1902 is an oral therapy that has shown positive effects on muscle function in animal models of Duchenne.  […]

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14 Jun
  • By Karen Harley
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CureDuchenne to Host Webinar with Santhera Pharmaceuticals on SIDEROS Trial

NEWPORT BEACH, Calif., June 14, 2017 –  CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with Santhera Pharmaceuticals on June 22 at noon ET/9 a.m. PT.   Santhera will provide an update about the ongoing SIDEROS trial, which is a trial of their investigational candidate […]

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08 Jun
  • By Karen Harley
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CureDuchenne Continues to Support Research for Duplication Mutations in Duchenne, and with Dr. Flanigan From Nationwide Children’s Hospital with a Coalition of Families Impacted by the Disease

NEWPORT BEACH, Calif., June 8, 2017: CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, continues to support Dr. Kevin Flanigan from Nationwide Children’s Hospital duplication 2 mutation research to find a treatment for a rare mutation of Duchenne.  CureDuchenne has funded more than $1 million to support this […]

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31 May
  • By Karen Harley
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CD Access to Provide Special Access Program for Duchenne Muscular Dystrophy Patients in Canada

NEWPORT BEACH, Calif., May 31, 2017 –  CD Access is a new nonprofit that provides patients access to drugs and therapies that are currently unavailable through clinical trial or prescription. CD Access’ first program allows Duchenne muscular dystrophy patients in Canada that previously participated in a clinical trial for drisapersen to begin redosing through a […]

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15 May
  • By Karen Harley
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CureDuchenne Support Duchenne Muscular Dystrophy Patients in Nepal

CureDuchenne firmly believes in working together to help any child with Duchenne muscular dystrophy find the support they need. Duchenne is a disorder which knows no cultural, economic, or social boundaries.  This fatal genetic muscle disease affects more than 300,000 children worldwide. Especially affected are muscular dystrophy patients in Nepal, as the region lacks resources […]

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04 May
  • By Karen Harley
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Eighth Annual Champions to CureDuchenne Gala Raises More Than $378,000 Towards Finding a Cure for Duchenne Muscular Dystrophy

Austin, Texas, May 4, 2017 – On April 8, hundreds gathered at The University of Texas Golf Club for a common goal, raising awareness and funds to help CureDuchenne in its mission to find a cure for Duchenne muscular dystrophy, a fatal genetic disease. The eighth annual Champions to CureDuchenne, emceed by Jim Spencer, chief […]

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01 May
  • By Karen Harley
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Anaheim Ducks Captain Ryan Getzlaf Supports CureDuchenne In 7th Annual Getzlaf Golf Shootout to Help Save Lives of Those with Duchenne

Newport Beach, Calif., May 1, 2017 –  Hitting a hole in one will feel twice as nice at the 7th Annual Getzlaf Golf Shootout, hosted by Anaheim Ducks Captain Ryan Getzlaf, because all funds raised will benefit CureDuchenne and their mission to find a cure for Duchenne muscular dystrophy. This year’s event will be held […]

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27 Mar
  • By Karen Harley
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Leader in Cure, Care and Community for Duchenne Muscular Dystrophy CureDuchenne Launches New Website

NEWPORT BEACH, Calif., March 27, 2017 – CureDuchenne, the leading nonprofit focused on finding a cure for Duchenne muscular dystrophy, launched a new website today at www.CureDuchenne.org to further reflect its mission which focuses on improving and extending the lives of all those with Duchenne. Duchenne muscular dystrophy is a fatal genetic disorder that causes […]

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