27 Mar
  • By Karen Harley
  • Cause in

Leader in Cure, Care and Community for Duchenne Muscular Dystrophy CureDuchenne Launches New Website

NEWPORT BEACH, Calif., March 27, 2017 – CureDuchenne, the leading nonprofit focused on finding a cure for Duchenne muscular dystrophy, launched a new website today at www.CureDuchenne.org to further reflect its mission which focuses on improving and extending the lives of all those with Duchenne. Duchenne muscular dystrophy is a fatal genetic disorder that causes […]

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21 Mar
  • By Karen Harley
  • Cause in

Eighth Annual Champions to CureDuchenne Gala Presented by Fired Up Charity Foundation To Be Held April 8 at The University of Texas Golf Club

(Austin, Texas) March 21, 2017 – Some champions are made on a field and some become champions by giving from the heart. On April 8, hundreds of champions committed to finding a cure for Duchenne muscular dystrophy will gather at The University of Texas Golf Club for the eighth annual Champions to CureDuchenne gala to […]

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27 Feb
  • By leilanifera
  • Cause in

CureDuchenne Ventures Invests in New Gene Editing Company Exonics Therapeutics to Advance CRISPR/Cas9 Therapy for Duchenne Muscular Dystrophy

NEWPORT BEACH, Calif., February 27, 2017 – CureDuchenne Ventures, a subsidiary of the nonprofit CureDuchenne that funds research to find a cure for Duchenne muscular dystrophy, announced today that they have committed $5 million in seed financing in Exonics Therapeutics, a new biotechnology company focused on utilizing gene editing technologies like CRISPR/Cas9 to advance the […]

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16 Jan
  • By leilanifera
  • Cause in

CureDuchenne to Host Webinar with TRiNDS on a New Solution for the Duchenne Research Community

NEWPORT BEACH, Calif., January 16, 2017 –  CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with TRiNDS, a new specialized contract research organization for neuromuscular diseases, on January 24 at 1 p.m. EST/10 a.m. PST. The webinar is an opportunity for the Duchenne community […]

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10 Jan
  • By L Fera
  • Cause in

BioMarin Transfers Duchenne Natural History Database to CureDuchenne To Improve Knowledge of Duchenne Patients and Improve Clinical Outcomes

NEWPORT BEACH, Calif., January 10, 2017 –  CureDuchenne announced today that BioMarinPharmaceutical Inc. has transferred its Duchenne natural history database to CureDuchenne, the venture philanthropy not-for-profit organization that is leading Duchenne research. CureDuchenne will house and maintain BioMarin’s natural history database, and will facilitate sharing of currently warehoused data and collaborate with other institutions as well, […]

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19 Dec
  • By L Fera
  • Cause in

CureDuchenne Ventures Invests in TRiNDS to Provide Clinical Trial Solutions for Neuromuscular Disorders

NEWPORT BEACH, Calif., Dec. 19, 2016 –  CureDuchenne Ventures, LLC, a company that funds research to find a cure for Duchenne muscular dystrophy, announced today that they invested inTRiNDS, LLC, a new contract research organization born from the Cooperative International Neuromuscular Research Group (CINRG) academic consortium. Therapeutic Research in Neuromuscular Disorders Solutions (TRiNDS) provides specialized […]

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