15 Nov
  • By Karen Harley
  • Cause in

4th Annual Napa in Newport Wine Auction to Save the Lives of Children with Duchenne Muscular Dystrophy

Join CureDuchenne’s Celebrated Event on March 3, 2018, at the Ritz-Carlton, Laguna Niguel NEWPORT BEACH Calif., November 15, 2017 – For those who appreciate the earthen opulence of wine country, exquisite cuisine and unparalleled auction lots, Southern California’s premier wine event is back for the much-anticipated 4th Annual Napa in Newport Wine Auction, to be […]

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31 Oct
  • By Karen Harley
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Fourth Annual BLINGO To CureDuchenne Raised $240,000 to Fund Duchenne Muscular Dystrophy Research

Philadelphia, PA (October 31, 2017) – Philadelphia celebrities and more than 250 prominent leaders, community members and guests raised $240,000 to fund Duchenne muscular dystrophy research at the fourth annual BLINGO to CureDuchenne on October 14 at The Westin Philadelphia.  This binged-out evening presented by Cross Properties, benefited CureDuchenne, a national nonprofit that raises awareness […]

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26 Oct
  • By Karen Harley
  • Cause in

CureDuchenne Launches Virtual Durable Medical Equipment Expo for the Duchenne Community

NEWPORT BEACH, Calif., October 26, 2017 – CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, launched the CureDuchenne Cares Virtual Durable Medical Equipment (DME) Expo as a resource for the Duchenne community.  Mobility equipment is important for those with Duchenne as they start to lose ambulation and muscle […]

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04 Oct
  • By Karen Harley
  • Cause in

Fourth Annual BLINGO To CureDuchenne To Honor Dr. Eric Olson

Philadelphia celebrities, prominent leaders and community members to gather for a blinged-out evening benefitting the fight against Duchenne Muscular Dystrophy Philadelphia, PA (October 4, 2017) – CureDuchenne, a national nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will put the bling in bingo for their fourth annual fundraiser […]

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03 Oct
  • By Karen Harley
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2nd Annual Dealing for Duchenne San Antonio Event to Fund Research to Help Save the Lives of Children with Duchenne Muscular Dystrophy

San Antonio, Texas, October 3, 2017 – Dealing for Duchenne, a charity event to raise funds for research for children afflicted with Duchenne muscular dystrophy, returns to San Antonio on Saturday, October 21.  The event will be held at Pedrotti’s North Wind Ranch in Helotes starting at 6 p.m. and will feature casino games, food, […]

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20 Sep
  • By Karen Harley
  • Cause in

7th Annual Getzlaf Golf Shootout Raises More than $546,000 To Help Find a Cure for Duchenne Muscular Dystrophy

— Anaheim Ducks Captain Ryan Getzlaf and Wife Paige Getzlaf Continue their Support of CureDuchenne –  Newport Beach, CA (Sept. 20, 2017) – The 7th Annual Getzlaf Golf Shootout benefiting CureDuchenne raised more than $546,000 to help find a cure for Duchenne muscular dystrophy. Hosted by Anaheim Ducks Captain Ryan Getzlaf and his wife Paige, […]

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15 Jun
  • By Karen Harley
  • Cause in

RASRx Receives Orphan Drug Designation from FDA

NEWPORT BEACH, Calif., June 15, 2017 – RASRx announced today that the United States Food and Drug Administration (FDA) has granted an Orphan Drug Designation (ODD) for its compound RASRx1902 for the treatment of Duchenne Muscular Dystrophy.  RASRx1902 is an oral therapy that has shown positive effects on muscle function in animal models of Duchenne.  […]

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14 Jun
  • By Karen Harley
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CureDuchenne to Host Webinar with Santhera Pharmaceuticals on SIDEROS Trial

NEWPORT BEACH, Calif., June 14, 2017 –  CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with Santhera Pharmaceuticals on June 22 at noon ET/9 a.m. PT.   Santhera will provide an update about the ongoing SIDEROS trial, which is a trial of their investigational candidate […]

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08 Jun
  • By Karen Harley
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CureDuchenne Continues to Support Research for Duplication Mutations in Duchenne, and with Dr. Flanigan From Nationwide Children’s Hospital with a Coalition of Families Impacted by the Disease

NEWPORT BEACH, Calif., June 8, 2017: CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, continues to support Dr. Kevin Flanigan from Nationwide Children’s Hospital duplication 2 mutation research to find a treatment for a rare mutation of Duchenne.  CureDuchenne has funded more than $1 million to support this […]

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31 May
  • By Karen Harley
  • Cause in

CD Access to Provide Special Access Program for Duchenne Muscular Dystrophy Patients in Canada

NEWPORT BEACH, Calif., May 31, 2017 –  CD Access is a new nonprofit that provides patients access to drugs and therapies that are currently unavailable through clinical trial or prescription. CD Access’ first program allows Duchenne muscular dystrophy patients in Canada that previously participated in a clinical trial for drisapersen to begin redosing through a […]

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