28 Nov
  • By Alicia Clough
  • Cause in

This #GivingTuesday, the Bill & Melinda Gates Foundation will Match Your Donation to CureDuchenne

Today, November 28, join CureDuchenne for #GivingTuesday, the global giving day that connects millions of people together to support and champion the causes they believe in by donating and fundraising on their behalf. Following the Thanksgiving holiday and the kickoff of the holiday shopping season, #GivingTuesday is meant to inspire people to give back to charities […]

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03 Nov
  • By Alicia Clough
  • Cause in

Sibling Saturday: Finding Inspiration in All Shapes and Sizes

No matter how long we live, the ones who will have known us the longest are our siblings.  For siblings Wil and Emily Cook, the time they have together is more precious knowing Duchenne muscular dystrophy is a critical factor in Wil’s life, and they make the most of it. Wil and Emily grew up […]

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28 Jun
  • By Alicia Clough
  • Cause in

Access to Exondys 51 in Texas

If you live in Texas, are amendable to exon skipping 51, and you are having difficulty accessing Exondys 51, you or your provider may file a complaint to HPM_Complaints@hhsc.state.tx.us.  Exondys 51 is covered by STAR Kids, Texas’s Medicaid managed care program.   Type of information needed: Patient identification number Reference identification number Health plan Provider […]

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16 Jun
  • By Alicia Clough
  • Cause in

Determination and Duchenne – Inspiration from my son on Father’s Day

Each year on Father’s Day, I like to take a moment and reflect on the memories I have with my family, specifically with my son Hawken. Being a father to Hawken has been, and always will be, the most meaningful role in my life. He has made me a proud father. His determination, kindness, and […]

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15 Jun
  • By Alicia Clough
  • Cause in

Dear Dad – A Father’s Day Message from Sons to Dads

Father’s Day is the perfect time to reflect on all that our fathers do for us. For boys with Duchenne, it’s a day that they get to cherish their fathers a little more for their exemplary strength and courage as they battle side by side with their sons against this incurable disease. The boys put […]

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12 May
  • By Alicia Clough
  • Cause in

Celebrating Motherhood and the Special Ties That Bind Moms

Twenty years ago I was honored with the greatest gift I could have ever imagined, motherhood. As I think about the most precious gift in my life, my son Hawken, I am elated with happiness. Watching him grow up, his curiosity, big heart and sense of humor continue to inspire me and give me hope […]

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09 May
  • By Alicia Clough
  • Cause in

Building A Stronger Community Through CureDuchenne.org

At CureDuchenne we understand that when families are affected by a disease with no cure such as Duchenne muscular dystrophy, finding a sense of community is important. We are pleased to introduce our new CureDuchenne website, which is focused on strengthening the Duchenne community and connecting families to the best resources available. Our updated website […]

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08 May
  • By Alicia Clough
  • Cause in

“Dear Mom” Giving Thanks for Mom This Mother’s Day

Mother’s Day is a reminder to love our moms a little extra and be thankful for all that they do for us. For boys with Duchenne, it’s a reminder of how their mothers impact their lives in the largest ways and with the smallest gestures. The boys say it best. Here’s some of their stories: […]

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28 Mar
  • By Alicia Clough
  • Cause in

Take Action: Support SB 643

CureDuchenne is proud to sponsor SB 643 (Pan). SB 643 will add Duchenne to the Genetically Handicapped Persons Program’s (GHPP) list of eligible medical conditions. Duchenne is a rare neuromuscular disorder characterized by progressive symmetric muscle weakness and degeneration stemming from the progressive loss of contractile function. Patients in California with Duchenne currently receive specialized […]

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23 Oct
  • By cure.duchenne
  • Cause in

Showing Nepal’s Duchenne Community our Southern California Hospitality

  To turn away from any member of the global Duchenne community would be to turn away from our own here at home. That’s why we at CureDuchenne, the non-profit that’s dedicated to finding a cure, seek out and support Duchenne communities around the world. We are honored to provide much needed support for those […]

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