12 Mar
  • By Brandon
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Global research nonprofit CureDuchenne joins Pfizer to Host Free Webinar on Pfizer’s Advancement to Phase III Gene Therapy Clinical Trial

NEWPORT BEACH, Calif., (March 10, 2020) – CureDuchenne, the leading global nonprofit focused on finding a cure for Duchenne muscular dystrophy, will co-host a free webinar with Pfizer to discuss their advancement to Phase III Clinical Trial for PF-06939926. The webinar will take place on Wednesday, March 11:00am PT/2:00pm ET and features Dr. Beth Belluscio, Pfizer Global Clinical […]

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03 Mar
  • By Brandon
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IMPORTANT ANNOUNCEMENT ON UPCOMING CURE DUCHENNE CARES EVENTS

3/13/2020: UPDATED ANNOUNCEMENT AVAILABLE HERE » We never want to put anyone from the Duchenne community at risk, and with the statements from the CDC regarding travel risks, especially for persons with compromised immune systems, we want to let everyone know that we will be changing the format and dates of some of our upcoming in-person […]

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07 Oct
  • By Greg Freeman
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24th International Annual Congress of the World Muscle Society (WMS) Day 5 Blog

The last day 24th International Annual Congress of the World Muscle Society (WMS) opened with a talk touching on a growing field in neuromuscular disorders – the use of digital biomarkers to understand disease progression and whether interventions are effective.  This can include use of elaborate full body suits during clinic visits to capture entire […]

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04 Oct
  • By Greg Freeman
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24th International Annual Congress of the World Muscle Society (WMS) Day 4 Blog

Many therapies being developed for Duchenne muscular dystrophy, including gene therapies, gene editing, and some exon-skipping approaches, rely on use of a virus to get the therapeutic components inside of muscle cells.  Since the most commonly used viruses for these purposes are AAVs (Adeno-Associated Viruses), many presentations covered AAVs at the 24th International Annual Congress […]

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03 Oct
  • By Greg Freeman
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24th International Annual Congress of the World Muscle Society (WMS) Day 3 Blog

Even though it’s a conference of the World Muscle Society, the presentations on Thursday morning focused on the disease processes happening in parts of the body other than muscle.  This included a talk outlining the different ways scientists are trying to understand how the brain can be affected in cases of Duchenne muscular dystrophy (DMD). […]

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World Muscle Society Day 2
03 Oct
  • By Greg Freeman
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24th International Annual Congress of the World Muscle Society (WMS) Day 2 Blog

Today was the first full day of research talks and posters at the 24th International Annual Congress of the World Muscle Society (WMS). It’s a busy meeting, with nearly 1,000 registered participants, 4 days of research talks, and over 570 research posters spread out among 5 different buildings.  As usual, updates in Duchenne Muscular Dystrophy […]

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World Muscle Society
01 Oct
  • By Greg Freeman
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24th International Annual Congress of the World Muscle Society (WMS) Day 1 Blog

Greetings from Copenhagen, Denmark, where several members of the CureDuchenne team are attending the 24th International Annual Congress of the World Muscle Society (WMS).  This is the largest annual international research conference focused solely on neuromuscular diseases.  We are here because it’s an opportunity to hear about the latest research developments and network with others […]

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12 Mar
  • By cure.duchenne
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Cure Duchenne to Celebrate 10-Year Anniversary at Champions to Cure Duchenne Gala

CureDuchenne will host our annual Champions to CureDuchenne Newport Beach Gala on Saturday, March 29 at the Balboa Bay Club & Resort. The event will celebrate CureDuchenne’s 10 years of successfully advancing Duchenne research. We’ll honor Doug Freeman, the business leader who helped shape our venture philanthropy model; dine on a delicious meal created by […]

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