22 Sep
  • By cure.duchenne
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Welcome Katie Mastro

  We are delighted to announce that Katie Mastro has joined joined CureDuchenne as program services manager. She is responsible for managing and expanding the CureDuchenne Cares program, engaging with families whose loved ones have Duchenne Muscular Dystrophy, and coordinating events. Katie jumped right in and participated in this past weekend’s CureDuchenne Cares workshop in […]

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08 May
  • By cure.duchenne
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Passion for Physical Therapy and Duchenne Care

Guest blog by Jennifer Wallace, physical therapist and project manager of CureDuchenne Cares. Yesterday was an important day for me since it was my last day working in a local pediatric physical therapy clinic.  Although I have loved my time at this clinic, I have a strong passion for working with my Duchenne patients.  I […]

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17 Feb
  • By cure.duchenne
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Self-Stretches for Duchenne

  As part of CureDuchenne Cares – a physical therapy, education and outreach program for the Duchenne community – we are pleased to share information on a self-stretching routine for those living with Duchenne muscular dystrophy. CureDuchenne and the Duchenne Therapy Network created a new video blog and a printable handout on stretching. Performing a […]

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20 Nov
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Power Wheelchair Options for Duchenne Muscular Dystrophy Patients

  Duchenne Therapy Network and CureDuchenne released their newest video blog that highlights power wheelchair options available for Duchenne muscular dystrophy patients.  Here we provide tips on what to look for when choosing a wheelchair. Front Wheel Drive Pros: Maneuverability Performance on terrain Space for foot movement Cons: Tracking issues at high speeds Mid-Wheel Drive […]

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17 Jun
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Cure Duchenne and the Duchenne Therapy Network Form Partnership to Provide Training to Physical Therapists and Duchenne Families

CureDuchenne is pleased to announce a partnership with the Duchenne Therapy Network to provide training to physical therapists as well as Duchenne families and caregivers about specialized care for Duchenne patients. Duchenne is a progressive muscle-wasting disease that has no approved treatment or cure. Consistent physical therapy is one of the most important pieces of […]

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