22 Aug
  • By cure.duchenne
  • Cause in

BACK TO SCHOOL: Communicating with the Team

  Guest blog by Celeste Graham, PT, Director of Physical Therapy, CureDuchenne Cares We are at that time of year when the shelves of our local superstores that just recently held beach towels and sunscreen are already being replaced with pencils, binders and backpacks . . . it is BACK TO SCHOOL time!     […]

READ MORE
03 Nov
  • By cure.duchenne
  • Cause in

Transfer Techniques to Protect Duchenne Patients and Caregivers

  Moving someone who has Duchenne from one location to another is no easy task, especially when considering patient and caregiver safety. Physical therapist,  owner at Duchenne Therapy Network and CureDuchenne Cares program director, Jennifer Wallace approaches this topic in her recent blog video highlighting the importance of using proper techniques when performing transfers. Transfers […]

READ MORE
23 Sep
  • By cure.duchenne
  • Cause in

Expanding and Improving Duchenne Standard of Care

  As a mom of a son with Duchenne, I understand the importance of physical therapy in this disease.  Early after Hawken’s diagnosis, we were referred to a physical therapy facility that knew very little about the nuances of physical therapy for Duchenne.  The PT’s in that state supported clinic actually used strength building exercises […]

READ MORE
22 Sep
  • By cure.duchenne
  • Cause in

Welcome Katie Mastro

  We are delighted to announce that Katie Mastro has joined joined CureDuchenne as program services manager. She is responsible for managing and expanding the CureDuchenne Cares program, engaging with families whose loved ones have Duchenne Muscular Dystrophy, and coordinating events. Katie jumped right in and participated in this past weekend’s CureDuchenne Cares workshop in […]

READ MORE
08 May
  • By cure.duchenne
  • Cause in

Passion for Physical Therapy and Duchenne Care

Guest blog by Jennifer Wallace, physical therapist and project manager of CureDuchenne Cares. Yesterday was an important day for me since it was my last day working in a local pediatric physical therapy clinic.  Although I have loved my time at this clinic, I have a strong passion for working with my Duchenne patients.  I […]

READ MORE
17 Feb
  • By cure.duchenne
  • Cause in

Self-Stretches for Duchenne

  As part of CureDuchenne Cares – a physical therapy, education and outreach program for the Duchenne community – we are pleased to share information on a self-stretching routine for those living with Duchenne muscular dystrophy. CureDuchenne and the Duchenne Therapy Network created a new video blog and a printable handout on stretching. Performing a […]

READ MORE
20 Nov
  • By cure.duchenne
  • Cause in

Power Wheelchair Options for Duchenne Muscular Dystrophy Patients

  Duchenne Therapy Network and CureDuchenne released their newest video blog that highlights power wheelchair options available for Duchenne muscular dystrophy patients.  Here we provide tips on what to look for when choosing a wheelchair. Front Wheel Drive Pros: Maneuverability Performance on terrain Space for foot movement Cons: Tracking issues at high speeds Mid-Wheel Drive […]

READ MORE
17 Jun
  • By cure.duchenne
  • Cause in

Cure Duchenne and the Duchenne Therapy Network Form Partnership to Provide Training to Physical Therapists and Duchenne Families

CureDuchenne is pleased to announce a partnership with the Duchenne Therapy Network to provide training to physical therapists as well as Duchenne families and caregivers about specialized care for Duchenne patients. Duchenne is a progressive muscle-wasting disease that has no approved treatment or cure. Consistent physical therapy is one of the most important pieces of […]

READ MORE