Leading a healthy lifestyle is something that any individual should aim towards. For those with Duchenne, making nutritional modifications has the potential to improve their overall health. Research has indicated that proper nutrition is one component that can improve the overall quality of life for a person living with Duchenne. Seven Daily Points […]
Guest blog by Tiffany Cook, CureDuchenne Family Resource Manager As a school-based Speech-Language Pathologist for more than 20 years and a Mom of a 17-year-old son with Duchenne muscular dystrophy, I can truly identify with the importance of conserving energy. For individuals with Duchenne muscular dystrophy, conserving energy involves physical energy as well as mental […]
CureDuchenne is proud to announce and welcome Tiffany Cook as its new Family Resource Manager. She, along with the CureDuchenne team, will be enhancing and presenting family education materials and investigating new ways to help families work with schools, insurance companies, clinicians, and other means of improving the lives of those families living with Duchenne. […]
Fourteen years ago, I travelled to Russia with my family, just months after our son Hawken had been diagnosed with Duchenne muscular dystrophy. It was very raw for us at that time, we had no idea what to do, CureDuchenne was the furthest thing from our minds. We were trying to deal with the diagnosis, […]
Physical Therapist Elina Gonzalez’s intuition has been a driving force in her career. During one of her early cases, a child presented signs of muscle weakness and underdevelopment, but remained undiagnosed. Elina took the time to carefully examine her patient and consult the child’s father with additional questions about the child’s symptoms. Elina’s gut feeling […]
After her 10-month-old nephew was diagnosed with Duchenne muscular dystrophy, Karin Gorman was inspired to learn more about the disease and find a way to make a difference in the lives of families and individuals affected by Duchenne. A fatal genetic disease with no cure, Duchenne muscular dystrophy causes muscle deterioration and affects more than […]
Darcy Peach discovered her calling to become a physical therapist while undergoing treatment for a volleyball injury in high school. During her treatment sessions, Darcy’s physical therapist took a great deal of care and time in treating her. She witnessed first-hand the therapeutic and relationship building benefits that occur during the process of physical […]
Guest blog by Celeste Graham, PT, Director of Physical Therapy, CureDuchenne Cares We are at that time of year when the shelves of our local superstores that just recently held beach towels and sunscreen are already being replaced with pencils, binders and backpacks . . . it is BACK TO SCHOOL time! […]
Moving someone who has Duchenne from one location to another is no easy task, especially when considering patient and caregiver safety. Physical therapist, owner at Duchenne Therapy Network and CureDuchenne Cares program director, Jennifer Wallace approaches this topic in her recent blog video highlighting the importance of using proper techniques when performing transfers. Transfers […]
As a mom of a son with Duchenne, I understand the importance of physical therapy in this disease. Early after Hawken’s diagnosis, we were referred to a physical therapy facility that knew very little about the nuances of physical therapy for Duchenne. The PT’s in that state supported clinic actually used strength building exercises […]
