For Families & Caregivers
Caring for Duchenne Patients
As we continue learning how to treat Duchenne, one method has consistently proven to be effective: physical therapy. Beneficial at all stages and ages of the disease, physical therapy even has the potential to delay Duchenne’s progression. To maintain mobility, flexibility and quality of life, it is crucial that PT routines occur daily. However, the uniqueness of the disease means patients require physical therapists with a specialized set of skills and knowledge.
Benefits of a Certified Physical Therapist
When it comes to Duchenne, no two patients are alike. With the constantly shifting conditions symptomatic of this disease, each patient requires a flexible, individualized treatment plan to provide the greatest benefit. And they need specially trained experts to help them. That’s why CureDuchenne created the first-of-its-kind certification program aimed at training physical therapists in how best to serve these boys.
Through the CureDuchenne Certified Physical Therapy program, therapists receive ongoing training and testing, ensuring they’re up-to-date on the most current practices. As it’s easy for an untrained therapist to do harm while trying to help a Duchenne patient, working only with a certified practitioner is imperative to treating these boys. Certified physical therapists know what stretches, exercises and routines are most beneficial, and least harmful, for Duchenne patients. Plus, they may even be able to help arrange insurance authorization for necessary equipment.
CureDuchenne Physical Therapy Staff
Jennifer Valdes, PT, draws from experience in pediatrics since 2002 with an emphasis in the muscular dystrophy population. She has been invited to present at Duchenne conferences and the Academy of Pediatric PT Annual conference, and has taught continuing education to healthcare professionals since 2009. She is the owner of Duchenne Therapy Network. She continues to practice and provide evaluation, treatment and consultations for those with Duchenne and Becker muscular dystrophy.
Doug Levine, PT, is the owner of Growing Places Therapy Services, PLLC. A physical therapist since 1997, he has primarily focused on pediatrics and Duchenne muscular dystrophy. Since 2006, Growing Places has served over 500 children and their families, providing pediatric physical, occupational and speech therapies in the home, school and daycare settings.
Frequently Asked Questions
For Physical Therapists
Physical therapy can make all the difference in Duchenne muscular dystrophy
Physical therapy for Duchenne muscular dystrophy is unique and requires specific knowledge of the disorder to provide appropriate treatment. Treating a patient with Duchenne without the proper understanding of the disease puts the patient at risk of further muscle damage and function loss. When applied correctly, physical therapy treatment has the potential to improve the lives and slow the progression of some of the disease impairments. CureDuchenne welcomes you to use our programs and resources to stay up to date with Duchenne treatment.
CureDuchenne Physical Therapy Program
CureDuchenne offers a high level program of educational opportunities and resources for physical therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy. Our goal is to help improve the lives of those living with Duchenne by advancing the knowledge of those who are treating them.