Consistent and frequent physical therapy (PT) is one of the few treatments, at this time, for those with Duchenne. It’s important through all stages and ages of Duchenne, with the potential to delay progression of the disease. Duchenne is a very unique diagnosis and requires physical therapists to adopt a completely different frame of mind from their approach with other kinds of patients.

Our CureDuchenne Cares Certified Physical Therapist program is designed to help families:

  • More easily locate a qualified provider for physical therapy
  • Have the assurance of the knowledge level of the therapist
  • Receive a higher level of care due to the therapist’s network connections
  • Benefit from continuity of care between the therapist and other healthcare providers operating on the same standards of care

Since no two patients are alike and Duchenne is a progressive condition that changes often, each patient needs an individualized evaluation and treatment plan that must be updated multiple times. A therapist can develop a plan of care to address flexibility, contractures, adaptations for weakness, modifications in daily routine, parent training, home program specifics, equipment recommendations and fittings. They can also help avoid compensations and activities that can lead to further muscle damage. And they may be able to help arrange insurance authorization for expensive and necessary equipment.

CureDuchenne Cares Certified Physical Therapists receive training on the most current standards of care. Skills are maintained through ongoing training and testing. And you‘ll gain the expertise and network access to refer patients to primary and allied healthcare providers in a timely manner.

Our certified therapists will:

  • Receive ongoing training and suggestions from the CureDuchenne Cares professional team
  • Receive patient referrals from CureDuchenne Cares
  • Enjoy a website presence on www.CureDuchenne.org
  • Be recognized by patients and health care professionals as a uniquely qualified provider
  • Display the CureDuchenne Cares Certified Physical Therapist seal for their site and materials to demonstrate certification
  • Be part of a larger community network of therapists to collaborate and consult with
  • Be introduced to new families and other local CureDuchenne Cares Certified Physical Therapists
  • Receive notifications of upcoming conferences and courses of interest

Become a CureDuchenne Cares Certified Physical Therapist and have a direct and personal impact on the lives of Duchenne patients.

The Importance of a Physical Therapist

Hover or tap on the problem area box below to view what a physical therapist can do

Muscle stiffness

Leads to contractures and gait difficulty

What a physical therapist can do

  • Stretches
  • Prescribe home stretching programs
  • Splinting and orthotics
  • Soft tissue mobilization
  • Equipment recommendations

Problematic activity

Either choice of activity or exertion during activity

What a physical therapist can do

  • Analyze demands of activity
  • Adapt activity to lessen physical demand
  • Suggest alternative activities
  • Consult with P.E. and coaches

Weakness

Leading to intolerance of activity and functional decline

What a physical therapist can do

  • Activity modifications
  • Assistive device recommendations
  • Assisted mobility assessments
  • Preferred activity recommendations

Functional mobility issues

  • Difficulty with mobility
  • Issue with current equipment

What a physical therapist can do

  • Recommend appropriate equipment –
  • Accounting for special needs associated with Duchenne
  • Consult with your medical equipment vendor
  • Assess new or current equipment for fit and function