Comprehensive care from an experienced health care team is essential to manage the unique needs of an individual living with Duchenne muscular dystrophy. Disease progression, including impact on function, will determine which specialists need to be involved on the team and when they’ll initiate specialized care.

Neurologists generally lead health care teams treating individuals with Duchenne. However, the experience each neurologist has in treating Duchenne is widely variable, so we believe it’s imperative to seek care from a neurologist with a well-documented history of providing exceptional care for Duchenne muscular dystrophy. Other families in the Duchenne community can be a great resource for recommendations. Suggested items to consider include: his/her ability to answer questions, clarity of instructions provided to manage care, amount of time spent with the patient/family, and overall physician reputation within the healthcare field.

United States

Han C. Phan, MD
Neurologist
Department of Pediatrics
University of Alabama at Birmingham
Birmingham, Alabama, United States

Ana Tesi-Rocha, MD
Pediatric Neurologist
Stanford Neuroscience Health Center
Stanford Health Care
213 Quarry Road
Palo Alto, California, United States

John Day, MD, PhD
Neurologist, Pediatrician
Department of Neurology
Standford Children’s Health
730 Welch Road, 2nd Fl
Palo Alto, California, United States

Nancy Halnon, MD
Pediatrician, Pediatric Cardiologist
Center for Duchenne Muscular Dystrophy at UCLA
BOX 951752, B2-427 MDCC
Los Angeles, California, United States

Stanley F. Nelson, MD
Geneticist
Center for Duchenne Muscular Dystrophy
BOX 957088
5506A Gonda Cntr
Los Angeles, California, United States

Craig M. McDonald, MD
Physical Medicine And Rehabilitation
Department of Physical Medicine & Rehabilitation
Professor of Pediatrics
Director MDA Neuromuscular Disease Clinics
UC Davis Health
4860 Y St., Suite 1700
Sacramento, California, United States

Leigh Maria Ramos-Platt, MD
Pediatric Neurologist
Muscular Dystrophy Association Neuromuscular Clinic
Children’s Hospital Los Angeles
4650 Sunset Blvd.
Los Angeles, California, United States

Perry B. Shieh, MD, PhD
Neurologist
Neuromuscular Program, Neurology
Ronald Reagan UCLA Medical Center
300 UCLA Medical Plaza
Suite B200
Los Angeles, California, United States

Dennis J. Matthews, MD
Physical Medicine And Rehabilitation
Department of Physical Medicine and Rehabilitation
School of Medicine, University of Colorado
Building 500 – 13001 E. 17th Place
Campus Box C290, Room E135
Aurora, Colorado, United States

Julie Parsons, MD
Pediatric Neurologist
Neuromuscular Clinic
Children’s Hospital Colorado
13123 East 16th Ave
Aurora, Colorado, United States

Matt Wicklund, MD
Neurologist
Neurology Clinic
Anschutz Outpatient Pavilion
University of Colorado Hospital
1635 Aurora Court, Suite 4200
Aurora, Colorado, United States

Cristian Ionita, MD
Pediatric Neurologist
Pediatric Neurology
Yale School of Medicine
333 Cedar Street
PO Box 208064
New Haven, Connecticut, United States

Mena T. Scavina, MD
Pediatric Neurologist
Division of Pediatric Neurology
Department of Pediatrics
Nemours/Alfred I. duPont Hospital for Children
1600 Rockland Road
Wilmington, Delaware, United States

Peter B. Kang, MD
Pediatric Neurologist
UF Health Center of Pediatric Neuromuscular and Rare Diseases
University of Florida
2000 SW Archer Rd.
Second Floor
Gainesville, Florida, United States

Richard Finkel, MD
Pediatric Neurologist
Division of Neurology, Department of Pediatrics
Nemours Children’s Health System
13535 Nemours Pkwy
Orlando, Florida, United States

Nancy L. Kuntz, MD
Pediatric Neurologist
Ann & Robert H. Lurie Children’s Hospital of Chicago
Box 51, 225 E Chicago Avenue
Chicago, Illinois, United States

Larry W. Markham, MD, MS
Pediatric Cardiologist
Pediatric Cardiology
Indiana University School of Medicine
RR 127 PCRD
Indianapolis, Indiana, United States

Katherine Mathews, MD
Pediatric Neurologist
Iowa Neuromuscular Program
University of Iowa Health Care
1317 BT
200 Hawkins Drive
Iowa City, Iowa, United States

Basil Darras, MD
Neurologist
Boston Children’s Hospital
Fegan 11 Neurology
300 Longwood Avenue, Fegan, 11th Floor
Boston, Massachusetts, United States

Brenda Wong, MD, MBBS
Pediatric Neurologist
Duchenne Muscular Dystrophy Center
UMass Memorial Children’s Medical Center
55 Lake Avenue North
Worcester, Massachusetts, United States

Peter Karachunski, MD
Pediatric Neurologist
Department of Neurology
University of Minnesota Medical School
420 Delaware St. SE
Minneapolis, Minnesota, United States

Randal Charles Richardson, MD
Pediatric Neurologist
Gillette Children’s Specialty Healthcare
Children’s Minnesota
200 E University Ave
Saint Paul, Minnesota, United States

Anne M. Connolly, MD
Pediatric Neurologist
St. Louis Children’s Hospital
One Children’s Place
St. Louis, Missouri, United States

Jeffrey Statland, MD
Neurologist
Department of Neurology
University of Kansas Medical Center
3901 Rainbow Boulevard
Kansas City, Missouri, United States

Darryl C. De Vivo, MD
Pediatric Neurologist
The Neurological Institute of New York
Department of Neurology
College of Physician and Surgeons
Columbia University
710 West 168th Street
Floor: 2, Room: 201
New York, New York, United States

Emma Ciafolini, MD
Pediatric Neurologist
University of Rochester Medical Center
601 Elmwood Avenue, AC-1
Rochester, New York, United States

Robert C. Griggs, MD
Neurologist
University of Rochester Medical Center
601 Elmwood Ave
Box CU 420669
Rochester, New York, United States

Edward Clinton Smith, MD
Pediatric Neurologist
Duke University School of Medicine
3000 Erwin Road
Durham, North Carolina, United States

Cuixia Tian, MD
Pediatric Neurologist
Division of Neurology
Cincinnati Children’s Hospital Medical Center
3333 Burnet Avenue
Cincinnati, Ohio, United States

Kevin M. Flanigan, MD
Neurologist, Pediatrician, Molecular Bio…
Center for Gene Therapy,
The Research Institute
Nationwide Children’s Hospital
700 Children’s Drive
Columbus, Ohio, United States

Meilan M. Rutter, MD
Pediatrician, Pediatric Endocrinologist
Department of Pediatrics
University of Cincinnati
3333 Burnet Ave
Cincinnati, Ohio, United States

Erika Finanger, MD
Pediatric Neurologist
Division of Neurology
Oregon Health & Science University Hospital
3181 SW Sam Jackson Park Road
Portland, Oregon, United States

Gihan Tennekoon, MBBS, MRCS, LCRP
Neurologist
The Children’s Hospital of Philadelphia
3400 Civic Center Blvd.
Philadelphia, Pennsylvania, United States

John Brandsema, MD
Pediatric Neurologist
Neuromuscular Education Director and Neuromuscular Section Head
Children’s Hospital of Philadelphia
3501 Civic Center Blvd.
10th Floor
Philadelphia, Pennsylvania, United States

Hoda Abdel Hamid, MD
Pediatric Neurologist
EMG Laboratory and Neuromuscular Program
Children’s Hospital of Pittsburgh of UPMC
Pediatric Neurology
4401 Penn Avenue, 2nd Floor
Pittsburgh, Pennsylvania, United States

Paula R. Clemens, MD
Neurologist
Professor and Vice Chair of Neurology
University of Pittsburgh School of Medicine
A506 Scaife Hall
3550 Terrace Street
Pittsburgh, Pennsylvania, United States

John L. Jefferies, MD, MPH, FACC, FAHA, FHFSA
Cardiologist, Pediatric Cardiologist
University of Tennessee Health Science Center
A312 Coleman Building
956 Court Avenue
Memphis, Tennessee, United States

W. Bryan Burnette, MD
Pediatric Neurologist
Monroe Carell Jr. Children’s Hospital
Vanderbilt University
2200 Children’s Way
9th Floor, Doctors’ Office Tower
Nashville, Tennessee, United States

Diana Patricia Castro, MD
Pediatric Neurologist
Children’s Medical Center
1935 Medical District Drive
Dallas, Texas, United States

Susan Theresa Iannaccone, MD
Pediatric Neurologist
Children’s Medical Center of Dallas
The University of Texas Southwestern Medical Center
1935 Medical District Drive
Dallas, Texas, United States

Warren A. Marks, MD
Neurologist
Texas Health Fort Worth
1500 Cooper Street
4th Floor
Fort Worth, Texas, United States

Farida Abid, MD
Pediatric Neurologist
Texas Children’s Hospital
6621 Fannin Street
Suite 1250
Houston, Texas, United States

Tim Lotze, MD
Neurologist
Texas Children’s Hospital
6701 Fannin Street
Suite 1250
Houston, Texas, United States

Russell J. Butterfield, MD, PhD
Pediatric Neurologist
Clinical Neurosciences Center
University of Utah Health
175 North Medical Drive East
Salt Lake City, Utah, United States

Amy Harper, MD
Pediatric Neurologist
Muscular Dystrophy Association Care Center
Children’s Hospital of Richmond at VCU
Children’s Pavilion
1000 East Broad Street
Richmond, Virginia, United States

Crystal Proud, MD
Pediatrician, Neurologist
Health Center at Medical Center
850 Southampton Ave
Norfolk, Virginia, United States

Susan D. Apkon, MD
Physical Medicine And Rehabilitation
Rehabilitation Medicine, Center for Clinical and Translational Research
Seattle Children’s Hospital
OB.8.410 – Rehabilitation Medicine
4800 Sand Point Way NE
Seattle, Washington, United States

Other Regions

Craig Campbell, MD
Pediatrician
Children’s Health Research Institute
800 Commissioners Road East
London, Canada

Jean K. Mah, MD, MSc
Pediatric Neurologist
Department of Paediatrics
University of Calgary
2500 University Dr. NW
Calgary, Canada

Ronald Cohn, MD, FACMG
Pediatrician
The Hospital for Sick Children
555 University Avenue
Toronto, Canada

Hugh McMillan, MD, MSc, FRCPC, FAAN
Pediatric Neurologist
Children’s Hospital of Eastern Ontario
401 Smyth Road
Ottawa, Canada

Kathryn Selby, BSc, MBChB, MRCP, FRCPC
Pediatric Neurologist
BC Children’s Hospital
4480 Oak Street
Vancouver, Canada

Ronald Smith, MBBS, FRCPC
Pediatrician
Department of Pediatrics
School of Medicine
Queen’s University
76 Stuart St
Kingston, Canada

Maggie Walter, MD
Neurologist
Friedrich-Baur-Institute
Neuromuscular Department of the LMU
Ziemssenstr. 1
Munich, Germany

Eugenio Mercuri, MD, PhD
Pediatric Neurologist
Università Cattolica del Sacro Cuore
Ist. di Neuropsichiatria Infantile
Rome, Italy

Jan Verschuuren, MD
Neurologist
Department of Neurology
Leiden University Medical Center
Albinusdreef 2
Leiden, Netherlands

Rosaline Quinlivan, BSc (Hons), MBBS, DCH, FRCPCH, FRCP, MD
Neurologist
Great Ormond Street Hospital
Children NHS Foundation Trust
Great Ormond Street
London, United Kingdom

Helen P. Roper, MBChB, MD
Pediatrician
Birmingham Children’s Hospitals
Steelhouse Lane
Birmingham, United Kingdom

Stefan Spinty, MD
Pediatric Neurologist
Alder Hey Children’s Hospital
Eaton Road
Liverpool, United Kingdom