Duchenne Healthcare Providers

Comprehensive care from an experienced health care team is essential to manage the unique needs of an individual living with Duchenne muscular dystrophy. Disease progression, including impact on function, will determine which specialists need to be involved on the team and when they’ll initiate specialized care.

Neurologists generally lead health care teams treating individuals with Duchenne. However, the experience each neurologist has in treating Duchenne is widely variable, so we believe it’s imperative to seek care from a neurologist with a well-documented history of providing exceptional care for Duchenne muscular dystrophy. Other families in the Duchenne community can be a great resource for recommendations. Suggested items to consider include: his/her ability to answer questions, clarity of instructions provided to manage care, amount of time spent with the patient/family, and overall physician reputation within the healthcare field.

View Map