TAKE ACTION FOR ALL THOSE WITH DUCHENNE

As a community, we need to continue our efforts to find a cure for every single person impacted by Duchenne.

That means funding research that treats all aspects of the disease.  That includes anti-inflammatory and anti-fibrosis therapies, gene therapy and gene editing; and cardiac therapies that address the leading cause of death for Duchenne.  As stewards of the Duchenne research, we need to be diligent in understanding and pursuing the right science that will have the greatest chance of leading to success.

For the Duchenne community who has supported our journey with hope and dollars, we still need your commitment to help the 87% of patients without an approved treatment. Our hearts are filled with gratitude for your support, and we look forward to your desire to help the Duchenne community reach the ultimate goal – a cure. Join us at www.IAmThe87percent.org to show your support.

Take action and help us fund critical research to help your loved one and other families impacted by Duchenne.  You can make an impact. Here is how you can help:

  • Create a personal fundraising page on www.crowdrise.com/87percent
  • Send personal e-mails and encourage friends, family and colleagues to donate to www.IAmThe87percent.org
  • Send us your photo to drop in our “Give Hope” digital frame or take a photo of your child holding “I Am the 87%” sign
  • Share and post on social media.  Tag @CureDuchenne and use hashtags #IAmthe87percent #CureDuchenne.

Click here for more details on how you can help.  Or contact Alicia at alicia@CureDuchenne.org or 949-872-2552

The 87% of children with Duchenne need to know they are our priority, and that the Duchenne community, our community, will never stop pushing until there are approved treatments and a cure for all those with Duchenne.

 

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You can advance the care, treatment and cure for Duchenne muscular dystrophy. Contributions in any amount can truly make a difference and can be credited to a fundraiser or event from the list below.

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