The silver screen has been featuring more and more stories about people with disabilities, whether it be developmental, physical, or mental. With more representation in popular culture, comes more understanding […]
Sarepta Therapeutics announced topline results from EMBARK
The U.S. FDA announced today its decision to approve AGAMREE (vamorolone), a new steroid for individuals with Duchenne muscular dystrophy 2 years or older. This approval comes largely based on […]
Volunteering within our community helps us lift everyone around us while making us feel good about our impact in the world. It’s something that is open to anyone, regardless of […]
Halloween is a time of year for candy, trick-or-treating, and of course, everyone’s favorite, dressing up as iconic Hollywood, video game, and pop culture characters. At first thought, donning a […]
Tips for Success in the Workplace with Duchenne.
A Race Against Time: The CureDuchenne Clinic’s Remarkable Efforts Bring Life-Changing Gene Therapy to Young Boy on the Brink of Ineligibility.
Navigating this new 2023 school year is a challenge for anyone. But with a condition like Duchenne muscular dystrophy to contend with, it can become even more difficult. To find success while transitioning to a new school year with Duchenne, it’s important to communicate with teachers, administrators, and staff your needs.
DUCHENNE TRAVEL TIPS:
The Golden Rule is Plan Ahead
Contact the airline ahead of time to approve medical or mobility devices.
Request special travel assistance like checking a scooter or power wheelchair.
Coordinate local transportation and other logistics at your destination.
Research ride options and reserve or rent a wheelchair-accessible van in advance.
