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We are “All in Building a Bridge over Duchenne”
Guest blog by Tammy and Scott Henegar Our family’s journey with Duchenne muscular dystrophy started in March 2011 when our 4 ½ year old adventurous and sweet young boy […]
First Drug Approved for Duchenne: A Beacon of Hope for the Duchenne Community
My husband Paul and I have dreamed of this day since our son Hawken was diagnosed with Duchenne almost 15 years ago! We are overwhelmed with joy to announce […]
Spotlight on Dani Trees, PT, CureDuchenne Cares Certified Physical Therapist
Every Duchenne parent wants to know that their child is in good hands with their medical team. Physical therapy is an important part of that medical team, and Texas […]
Our Journey Dealing With Duchenne
Guest blog by Maribel and Ramiro Munoz Our son Joshua was born in 2007. Joshua, our oldest son, is an amazing and fun-loving boy. He was diagnosed with Duchenne Muscular […]
BACK TO SCHOOL: Communicating with the Team
Guest blog by Celeste Graham, PT, ex-Director of Physical Therapy, CureDuchenne CaresUPDATED 8/12/2022 We are at that time of year when the shelves of our local superstores that just recently […]
Navigating College, Living with Duchenne
Guest blog by Hawken Miller For those with Duchenne Muscular Dystrophy the experience and education of a four-year university is likely within your grasp, and being away from home […]
Pfizer, Bamboo and CureDuchenne – An Endorsement on the Right Track
Today, we are very pleased to announce that Pfizer has acquired Bamboo Therapeutics, a gene therapy company we invested in earlier this year through CureDuchenne Ventures. The deal is valued […]
Thoughts about PTC
The announcement that PTC recently submitted an appeal to elevate the “Refusal to File” of Translarna (also known as ataluren and PTC124) to the next level of FDA management is […]
Summer Road Trip
Guest blog by Hawken Miller Many of the things I don’t think are possible for me to do really are. Once I get over my initial apprehension and thoughts […]