1st

Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.

9

CureDuchenne funded research projects
have advanced to human clinical trials

BE A MEMBER OF OUR PATIENT REGISTRY

Enroll here to make sure you’re alerted and aware of the latest pharmaceutical treatments for Duchenne muscular dystrophy that become available as research progresses every day.

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”

READ FAMILY STORY

Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breathe independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.

LEARN ABOUT THE DISEASE

UPCOMING EVENTS, WORKSHOPS & WEBINARS

11 September @ 12:00 am - 11:59 pm

Jim’s Rideabout OZ 2018

Jim Ruetz will be hitting the road for his 5th time to raise awareness and money for research for Duchenne Muscular Dystrophy. Jim’s Ride Around OZ Tour will take him all around Australia this summer.

04 October @ 06:00 pm - 07:00 pm

A Napa Night

Venue - A private home in Dedham, MA. Address to be provided to confirmed guests. Champagne & hors d’oeuvres upon arrival. Two courses paired with The Mascot’s 3 Vintages 2011, 2012 & 2013. Dessert paired with a complementary wine from Europe.

12 October @ 08:30 am - 04:30 pm

Continuing Education | Duchenne: Current Understanding and Treatment – Buffalo, NY

This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.

13 October @ 08:00 am - 03:30 pm

Family & Caregiver Workshop – Buffalo, NY

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

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Dealing for Duchenne – San Antonio

Dealing for Duchenne - San Antonio, benefitting UT Southwestern and Dr. Eric Olson, is a “Night of Hope” that connects the San Antonio community to a global network of families, caretakers, doctors, researchers and philanthropic-minded people like you, to help find a cure for children and young-adults with Duchenne muscular dystrophy.

06:00 pm - 10:00 pm
13715 Fm 1560 N
01August
Learn More

DUCHENNE ARTICLES

NEWPORT BEACH, Calif. – (BUSINESS WIRE) – CureDuchenne, a national venture philanthropy nonprofit focused on finding a cure for Duchenne muscular dystrophy (DMD), announced today a $500,000 investment into 4D Molecular Therapeutics (4DMT), a world-leader in Therapeutic Vector Evolution for adeno-associated virus (AAV) gene therapy vector discovery and product development, in an effort to advance […]

CURE DUCHENNE NEWS

NEWPORT BEACH, Calif. – (BUSINESS WIRE) – CureDuchenne, a national venture philanthropy nonprofit focused on finding a cure for Duchenne muscular dystrophy (DMD), announced today a $500,000 investment into 4D Molecular Therapeutics (4DMT), a world-leader in Therapeutic Vector Evolution for adeno-associated virus (AAV) gene therapy vector discovery and product development, in an effort to advance […]

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