Dealing for Duchenne Austin with Mack Brown

Watch a short clip from “On the Road with Roxanne” about the “Dealing for Duchenne” Charity Poker night with Sally and Mack Brown in Austin, Texas. The night was of course a fundraiser to raise money and awareness for a cure for Duchenne muscular dystrophy.

Check out Roxanne’s clip:

Mack and Sally Brown Score a Winning Touchdown for DMD with “Dealing for Duchenne” in Austin

Saturday night was a magical evening in Austin.  Coach Mack Brown of the Texas Longhorns and his incredible wife, Sally, hosted “Dealing for Duchenne,” a charity poker tournament that raised funds for CureDuchenne and DMD research. 

Throughout the week, Tim Revell, who has a son with DMD, and the event chair persons, Kristin Spencer, Julie Applewhite and Monica Korman appeared on all the major TV and sport radio shows to promote the event, but more importantly, inform the public about Duchenne muscular dystrophy, the leading genetic killer of children.

I’ve always heard how wonderful Mack and Sally are. For me, they are the definition of graciousness and generosity. I’m truly touched by their compassion for all of our boys with Duchenne.

Over 350 people joined us and enjoyed the music of “Asleep at the Wheel,” and had the opportunity to mingle with current and past Longhorn football players.  Two Heisman trophy winners, Ricky Williams and Earl Campbell were among the long list of athletes and celebrities that made this a winning night.

One of my favorite guests was “Bevo” the beautiful bull that is the Longhorn’s mascot.  Several parents of boys with Duchenne from Austin, Houston, and other parts of Texas attended to show their support.

CureDuchenne announced a new research initiative which will fund Dr. Jeff Chamberlain at the University of Washington.  Dr. Chamberlain has been working on gene therapy for DMD for the past 20 years and we are very happy to see him move into clinical trials.  When I saw the crowd on Saturday, I had the distinct feeling that we may turn the corner in awareness for Duchenne and treatments for our boys.  This all started with a small event in Austin, but with Tim and Laura Revell’s persistence and faith, this has become a yearly celebrity event.

Dr. Jeff Chamberlain in his Cowboy Chic

CureDuchenne has established a formula to take the ideas of people who are interested in Duchenne and turn them into successful events…whether it’s a gala dinner, a poker tournament, a mountain climb, or whatever someone’s interest is, we can help you harness that interest along with your passion for saving our sons and turn it into an event that will send research dollars into the projects that are most likely to save our sons.  CureDuchenne already has three funding projects in phase ll and phase lll trials and we most likely will see two additional projects reach clinical trials in 2010 or early 2011.

Please contact me or Sean Marshall if you have an idea…no idea is too crazy.  We are sponsoring a rodeo, created by a very intentional mom…more on that later.  We have the momentum now, let’s keep it going.

Debra

Dealing with Duchenne Muscular Dystrophy

Please be sure to watch this short clip featuring Tim Revell and Julie Applewhite who are helping out with the “Dealing for Duchenne Charity Casino Night“.  The event, held this Saturday May 1st, will be hosted by Sally & Mack Brown at the University of Texas Golf Club.   All of the proceeds will go towards finding a cure for Duchenne Muscular Dsytrophy.

If you would like to buy tickets for the event or make a donation, please visit:  http://www.dealingforduchenneaustin.org/

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