Dealing for Duchenne Los Angeles: Celebrity Poker Tournament with Co-Hosts Anne Heche and James Tupper

On June 12th, CureDuchenne is pleased to have Anne Heche & James Tupper Co-Host our 3rd Annual “Dealing for Duchenne Celebrity Poker Tournament“.

Anne and James will be joined by others stars including: Mandy Moore, Molly Ringwald, Willie Garson, Josh Malina, Kevin Weisman, Michael Rapaport, Kelli Williams, Kevin & Bean from KROQ, and more!

See our Event Website for more details!

The event will be held at the Petersen Automotive Museum in Los Angeles starting at 6:30pm.

Because of the incredible support we’ve had in the last two years, the Center for Duchenne Muscular Dystrophy at UCLA is opening soon! Proceeds from this years event will help support this center.

As always, we continually support researchers who are actively seeking a cure to Duchenne muscular dystrophy (DMD).  Having a center here in Southern California will just be another stepping stone to not only treating families affected by DMD but also discovering a cure.

The evening will be full of activities including:

• Celebrity Texas Hold ‘em Tournament

• Craps and Black Jack Tables

• Silent and Live Auctions

• Opportunity Drawing

• Dinner by Wolfgang Puck Catering

• Cocktails by West Coast Beverage

To be an Event Sponsor or to Donate a Gift-in-Kind, please head over to our Event Website.

If you would like to purchase tickets, you can do so by clicking here.

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Mack and Sally Brown Score a Winning Touchdown for DMD with “Dealing for Duchenne” in Austin

Saturday night was a magical evening in Austin.  Coach Mack Brown of the Texas Longhorns and his incredible wife, Sally, hosted “Dealing for Duchenne,” a charity poker tournament that raised funds for CureDuchenne and DMD research. 

Throughout the week, Tim Revell, who has a son with DMD, and the event chair persons, Kristin Spencer, Julie Applewhite and Monica Korman appeared on all the major TV and sport radio shows to promote the event, but more importantly, inform the public about Duchenne muscular dystrophy, the leading genetic killer of children.

I’ve always heard how wonderful Mack and Sally are. For me, they are the definition of graciousness and generosity. I’m truly touched by their compassion for all of our boys with Duchenne.

Over 350 people joined us and enjoyed the music of “Asleep at the Wheel,” and had the opportunity to mingle with current and past Longhorn football players.  Two Heisman trophy winners, Ricky Williams and Earl Campbell were among the long list of athletes and celebrities that made this a winning night.

One of my favorite guests was “Bevo” the beautiful bull that is the Longhorn’s mascot.  Several parents of boys with Duchenne from Austin, Houston, and other parts of Texas attended to show their support.

CureDuchenne announced a new research initiative which will fund Dr. Jeff Chamberlain at the University of Washington.  Dr. Chamberlain has been working on gene therapy for DMD for the past 20 years and we are very happy to see him move into clinical trials.  When I saw the crowd on Saturday, I had the distinct feeling that we may turn the corner in awareness for Duchenne and treatments for our boys.  This all started with a small event in Austin, but with Tim and Laura Revell’s persistence and faith, this has become a yearly celebrity event.

Dr. Jeff Chamberlain in his Cowboy Chic

CureDuchenne has established a formula to take the ideas of people who are interested in Duchenne and turn them into successful events…whether it’s a gala dinner, a poker tournament, a mountain climb, or whatever someone’s interest is, we can help you harness that interest along with your passion for saving our sons and turn it into an event that will send research dollars into the projects that are most likely to save our sons.  CureDuchenne already has three funding projects in phase ll and phase lll trials and we most likely will see two additional projects reach clinical trials in 2010 or early 2011.

Please contact me or Sean Marshall if you have an idea…no idea is too crazy.  We are sponsoring a rodeo, created by a very intentional mom…more on that later.  We have the momentum now, let’s keep it going.

Debra

Cure Duchenne – “Dealing for Duchenne – Austin”

We’re getting ready for a really big party in Austin on May 1^st!  University of Texas Football Head Coach Mack Brown and his wife Sally are hosting the “Dealing for Duchenne Charity Casino Night”.  The CureDuchenne event will raise awareness and money for Duchenne muscular dystrophy (DMD).

Mack and Sally Brown and the incredible event committee have gathered one-of-a-kind auction items.  

Here’s a list of just some of the items up for bid:

• Private In-Home Performance by Larry Gatlin                              
• Roberto Coin Longhorn Necklace                                        
• First Pitch at Round Rock Express with Will Muschamp           
• Penthouse in Telluride – 3BR                                                   
• Tour of CSI Set in Los Angeles given by actor Rex Linn
• Swimming Lessons by Olympic Gold Medalist Aaron Piersol
• Breitling Orbiter Trip – New Mexico; Hotel, Air Fare
• 2005 Silver Oak Alexander Valley Cabernet Sauvignon Limited Edition BCS 2010 Magnum signed by Mack Brown and Colt McCoy (1 of 2 made)

It’s going to be a great evening!  Be to register!

Register to attend here:

http://dealingforthecure.eventbrite.com

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