FDA, Medical Product Regulation, & Advocate Involvement Webinar
July 12, 2010 by CureDuchenne
Filed under Events
FDA, Medical Product Regulation, and Advocate Involvement
To Register, Click Here
2010 Climb to Cure Duchenne Raises over $250,000 for DMD Research
June 22, 2010 by CureDuchenne
Filed under Events, Featured

Take a good, long look at the above photo. What do you see? You might see a man on a mountain top. You might see the snow. You might see the clouds in the background.
However, if you look a bit deeper, you’ll realize there is a story behind this picture. Paul Miller, the man seen standing triumphant with ice ax in hand, is the father of a boy with Duchenne muscular dystrophy. This picture was taken at the summit of Mt. Shasta in Northern California at 14,162 feet in below freezing temperatures.
This picture is merely a symbol of the dedicated parents and DMD advocates from around the country that participated in this year’s 2010 Climb to Cure Duchenne: Pick Your Peak.
The climb consisted of literally hundreds of people all over the country who chose to assemble a team, pick a peak, and climb on June 19th to raise awareness and money for a cure for Duchenne muscular dystrophy. It was an amazing event for everyone involved.
The climb was successful in two primary and extremely important ways. First, more than ever, people from around the country were introduced to Duchenne muscular dystrophy and learned about the cause. Because of this event, there are many people who have signed on to help find a cure.
Second, this event raised more than $250,000 that will go towards research! In fact, Cure Duchenne will allocate the funds to Dr. Chamberlain, of the University of Washington, and Dr. Stephen Tapscott, of the Fred Hutchinson Cancer Research Center, who have identified a promising gene therapy that could lead to a treatment of all boys afflicted with DMD. This is very big news!
Finding a cure to something as big a DMD is going to require massive action. It’s going to require getting out there and making a difference. It’s going to require doing for our boys what they can’t do for themselves.
Cure Duchenne is extremely grateful to all those who took action and participated in this year’s Climb to Cure Duchenne.
So when you look at a photo like the one of Paul Miller above, recognize that the struggle he underwent is nothing compared to the struggle our boys go through on a daily basis. For all those who want to see a cure found, join us in taking massive action and help Cure Duchenne!
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Dealing for Duchenne Celebrity Poker Tournament Raises Over $200,000
June 21, 2010 by CureDuchenne
Filed under Featured, Past Events
This year’s “Dealing for Duchenne” Celebrity Poker Tournament was a smashing success! We had record numbers with over 450 people in attendance. The night’s event helped to raise more than $200,000 that will go towards UCLA DMD Research & Clinic. This is very big news for everyone affected by DMD here on the West coast and Southwest region.
Special thanks go to Amy & Chris Martin who chaired the event. Amy & Chris are experts at putting together an amazing team and making a perfect evening happen. Thank you to everyone involved!
If you would like to donate to the UCLA DMD Clinic, please click here:

Enjoy some photos from the evening:















