CureDuchenne Launches "Dollar 4 Duchenne" Campaign Today for World Duchenne Awareness Day
Newport Beach, Calif., SEPTEMBER 7, 2014 – CureDuchenne launched the “Dollar 4 Duchenne” campaign today during World Duchenne Awareness Day to fund research to find a cure for Duchenne muscular dystrophy. The “Dollar 4 Duchenne” campaign encourages people to donate one dollar to help fund Duchenne research. “Dollar 4 Duchenne” is part of a comprehensive CureDuchenne fundraising campaign to raise $7 million to fund a Duchenne research project.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne, recently announced a new $7 million collaboration with the biotechnology company Prosensa (NASDAQ: RNA) to help get experimental medicines to patients with Duchenne muscular dystrophy more quickly. The new initiative will help restart dosing of medication for patients who participated in previous clinical studies of exon skipping drugs – a promising approach to the disease – and could help accelerate the development timelines of four exon skipping drug candidates.
“Every dollar for Duchenne can make a difference,” said Debra Miller, founder and CEO of CureDuchenne. “Everyone can help cure this devastating disease and give boys who suffer from Duchenne a chance of a lifetime. We need this funding now in order to accelerate access to potential life-saving drugs to help this generation of Duchenne boys. Please give a dollar for Duchenne.”
Duchenne is a progressive muscle-wasting disease that impacts one in every 3,500 boys. Boys are usually diagnosed at age 5, are in a wheelchair by 12 and most don’t survive their mid-20s. Currently there is no cure for Duchenne.
To donate, go to: https://www.indiegogo.com/projects/dollar-4-duchenne. For more information on CureDuchenne go to www.cureduchenne.org or call 949-872-2552. Follow us on Facebook, Twitter and YouTube.
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been successful in being a catalyst for human clinical trials.