Current Year Events

Questions Regarding Deflazacort Access and Regulatory Status

November 1, 2016

This informational webinar will highlight the regulatory process to date, update the community on Marathon Pharmaceutical’s Expanded Access Program (EAP) for deflazacort and discuss what a potential FDA approval of deflazacort would mean in terms of access to the drug in the United States. Some of those who currently import versions of deflazacort from abroad may have recently received an update from their distributor with initial details, which we will discuss along with steps current deflazacort patients might choose to take to help ensure continued access to U.S. supply of deflazacort if FDA approval is granted.

CureDuchenne Cares Family Summit

October 22, 2016

The CureDuchenne Cares Family Summit is a free, unique educational event for families who have loved ones with Duchenne muscular dystrophy. Currently with no cure, education on various care and management practices are very important to extend quality of life for developing children with this disease.

2016 Dealing for Duchenne - Cambridge

October 20, 2016

An Evening Offering Delicious food provided by local chefs, wine & beer bar with signature cocktails throughout the evening, photo-ops with Vegas characters of yesteryear, classic Vegas gaming tables including: poker, blackjack & roulette, auctions & prizes throughout.

2016 Dealing for Duchenne - San Antonio

October 15, 2016

Dealing for Duchenne - San Antonio is a must-attend charity event benefiting CureDuchenne. Join us for an exciting night of casino games as we raise money for research for Duchenne muscular dystrophy.

2016 All in for Duchenne

October 15, 2016

The 4th Annual All in for Duchenne to benefit Braedan’s Bridge is happening in in Sylvania, OH. 100% of the proceeds from this event will fund research to find a cure for Duchenne muscular dystrophy. This sports-themed event held in a sports complex field house will feature games, raffles, silent auction, dinner by Jed’s Barbeque and Brew and much more!

Latest Duplication Research Update for Duchenne Webinar

October 12, 2016

CureDuchenne will host a webinar with Dr. Kevin Flanigan from Nationwide Children’s Hospital. The webinar is an opportunity for the Duchenne community to learn the most recent status of Dr. Flanigan’s duplication mutation research. Dr. Flanigan will present new data on his duplication 2 research.

SareptAssist Webinar

October 11, 2016

CureDuchenne is hosting a webinar with Sarepta Therapeutics to provide the Duchenne community an overview of Sarepta's patient support program, SareptAssist. The webinar will address patient referalls, considerations for starting therapy, case management process and financial assistance programs.

CureDuchenne Cares Workshop – Charlotte, NC (Caregivers)

September 24, 2016

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. The free session also provides updates on Duchenne research and clinical trials.

CureDuchenne Cares – Charlotte, NC (Therapists)

September 23, 2016

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. This course is for physical and occupational therapist who are looking to learn more about Duchenne.

2016 Getzlaf Golf Shootout

August 26, 2016

Join Ryan Getzlaf, captain of the Anaheim Ducks, for the Getzlaf Golf Shootout – a two-day charity event, including a reception and a golf tournament – that brings together athletes, celebrities and community leaders, all teaming up in support of CureDuchenne.

CureDuchenne Cares Workshop - Sacramento

July 30, 2016

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. The free session also provides updates on Duchenne research and clinical trials.

CureDuchenne Cares Workshop - Chicago

July 9, 2016

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. The free session also provides updates on Duchenne research and clinical trials.

Bamboo Therapeutics Webinar

June 13, 2016

During the webinar, Dr. Samulski will explain the basics of gene therapy and describe Bamboo’s approach to developing a treatment for Duchenne; by utilizing a disabled virus to deliver a small, highly optimized version of the dystrophin gene systemically to skeletal and cardiac muscle.

CureDuchenne Cares Workshop - Long Island (Caregivers)

June 11, 2016

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. The free session also provides updates on Duchenne research and clinical trials.

CureDuchenne Cares - Long Island (Therapists)

June 10, 2016

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. This course is for physical and occupational therapist who are looking to learn more about Duchenne.

CureDuchenne Cares Workshop - Waltham, MA

May 14, 2016

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. The free session also provides updates on Duchenne research and clinical trials.

2016 Blingo to CureDuchenne

April 30, 2016

BLINGO is a night of celebrity bingo, bling and celebration where Philadelphians come together to make a huge difference for hundreds of thousands of boys. Join our celebrity bingo callers to dine, drink, play bingo and win great prizes.

CureDuchenne Cares Workshop - Kansas City

April 23, 2016

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. The free session also provides updates on Duchenne research and clinical trials.

2012 Events

2011 Events