Current Year Events

Duchenne Research and Physical Therapy Update – San Jose, CA

September 27, 2014

Join us for an informative and interactive session on Duchenne muscular dystrophy in San Jose, CA on September 27, 2014.

4th Annual Getzlaf Golf Shootout

September 7, 2014

Join Ryan Getzlaf, captain of the Anaheim Ducks, for the Getzlaf Golf Shootout – a two-day charity event, including a reception and a golf tournament – that brings together athletes, celebrities and community leaders, all teaming up in support of CureDuchenne.

Blingo to CureDuchenne

May 3, 2014

BLINGO is night of celebrity bingo, bling and celebration where Philadelphians come together to support an incredibly worthy cause – CureDuchenne.

Champions to CureDuchenne - Austin Gala

April 11, 2014

Please attend our Champions to CureDuchenne Gala on April 11th in Austin, Texas. With your help we can fund critical research into treatment for Duchenne muscular dystrophy. Together we can CureDuchenne.

2014 Champions to CureDuchenne - Newport Beach Gala

March 29, 2014

Champions to CureDuchenne is a prestigious charity event benefiting CureDuchenne - a national nonprofit whose mission is its name - to CURE Duchenne, a devastating and lethal muscle disease affecting one in every 3,500 boys.

Bowling to CureDuchenne - 2014

February 16, 2014

We invite you to participate in the second annual Bowling to CureDuchenne event hosted by former Dallas Cowboy Rocket Ismail on Sunday, February 16, 2014 benefiting CureDuchenne. Guests will bowl with sports celebrities from Dallas Cowboys and Texas Rangers. The event includes games, food, drinks, raffle items and silent auction.

Tinker Bell Half Marathon

January 19, 2014

Join the CureDuchenne Crusaders team and run the Tinker Bell Half Marathon on January 19, 2014 to raise awareness and funds to find a cure for Duchenne. With your participation, you can support CureDuchenne and raise money to fund critical research to help save this generation of Duchenne boys.

Climb to CureDuchenne: Pick Your Peak 2013

December 31, 2013

Pick a mountain, hill or tall building to climb to raise funds and increase awareness of Duchenne, a devastating and lethal muscle disease that impacts 1 in 3,500 boys. Boys with Duchenne are usually diagnosed by the age of 5, in a wheelchair by age 12 and most don’t survive their mid-20s. Every day two boys die from Duchenne. Duchenne can occur in any family, from any race and from any background. Support the 300,000 boys worldwide with Duchenne by participating in this year’s Climb to CureDuchenne.

3rd Annual Getzlaf Golf Shootout

September 7, 2013

Join Ryan Getzlaf, captain of the Anaheim Ducks, for the Getzlaf Golf Shootout – a two-day charity event, including a reception and a golf tournament – that brings together athletes, celebrities and community leaders, all teaming up in support of CureDuchenne.

All in for Duchenne

September 7, 2013

"All in For Duchenne" is event to benefit Duchenne muscular dystrophy. Event includeds dinner, drinks, reverse raffle, and casino games.

2013 Cajun-Parrot Run

June 24, 2013

This Year’s “Cajun- Parrot Run” will take us to America’s southernmost point –Key West, Florida (The Parrot part of the trip). In route, we’ll stop in my favorite unique city in the US – New Orleans (The Cajun part of the trip) and hit 12 states on a 4,000+ mile, 12-day trip.

Rockin to CureDuchenne

June 2, 2013

Come join us for music and fun as we rock to some local bands to raise awareness and fund research to find a cure for Duchenne. All proceeds to benefit CureDuchenne.

Dealing for Duchenne 2013

May 11, 2013

The 6th annual Dealing for Duchenne event, 6pm – at the legendary Sony Pictures Studios. The evening includes a celebrity poker tournament and charity gambling, amazing auction, special live musical guest and dinner by Wolfgang Puck. Proceeds will benefit the Center for Duchenne Muscular Dystrophy at UCLA.

Ryan and Jack Fight Back 5k Run/1 Mile Fun Walk Benefiting CureDchenne

May 11, 2013

Join the Ryan and Jack Fight Back 5K Run and 1 Mile Fun Walk benefitting CureDuchenne on May 11, 2013 to raise awareness and funds to find a cure for Duchenne. With your participation, you can support CureDuchenne and raise money to fund critical research to help save this generation of Duchenne boys.

Webinar with GSK

May 6, 2013

You are invited to participate in a “Drisapersen Update” webinar with GSK. The purpose of the webinar is to update the Duchenne community about Phase II clinical trial results for GSK’s drisapersen drug for the treatment of Duchenne muscular dystrophy. GSK investigator John Kraus will present and answer submitted questions. CureDuchenne, in collaboration with MDA and PPMD, is pleased to co-sponsor this webinar.

2013 Scientific Summit Dinner

March 29, 2013

CureDuchenne’s scientific advisory board meets yearly to review our research goals and develop the most impactful research plan which will get treatments to Duchenne patients as soon as possible.This year, our advisors have generously offered to participate with local Duchenne families for an informal dinner on Friday, March 29th where they will share a brief explanation of their current work and answer questions.

2012 Events

2011 Events