Register for the 2010 Climb to Cure Duchenne: Pick Your Peak!
March 2, 2010 by CureDuchenne
Filed under Featured
WHAT: A coordinated nationwide climb from participants from all parts of the United States. The goal is that every team raises at least $5,000 that goes directly to research. We hope to have 50 to 200 teams. Just imagine $250,000 to a $1 million dollars going to find a cure for our boys!
WHERE: Nationwide! Teams from every state will be participating. As the title suggests, climbers will “pick their peak”, train, and then climb it!
WHO: You! Your friend! Your neighbor! Everyone and anyone who is interested in bringing a cure to Duchenne muscular dystrophy! Everyone can participate! Whether it’s a mountain, bluff, or skyscraper! Climb it!
WHEN: June 19th and 20th. Every climber around the country will be climbing on the same weekend! There will be power when we all climb together! Decide which day works best for you!
WHY: We are climbing to raise awareness and money to fund leading Duchenne muscular dystrophy (DMD) research. We are climbing for the boys that can’t.
HOW:
Step 1 – Click here to download your Team Captain Packet or Team Member Packet. (This gives you all the step by step details of what you need to know!)
Step 2 – Decide which peak you would like to climb. Pick whichever one you would like! If you need help knowing which peaks there are in your area, click on our list of peaks in the 50 states
Step 3 – Assemble your team. You can climb solo if you wish or put together a team – as many people as you want! The more people on a team the better – more awareness raised and it’s easier to raise money when working together!
Step 4 – Sign up using the form below. Enter your information below. If you have any questions, just contact Sean Marshall at 949-872-2552 or sean(at)cureduchenne.org
Step 5 – Start fundraising and start training!
Mother & Author of a Boy with Duchenne Muscular Dystrophy
January 18, 2010 by CureDuchenne
Filed under Featured, In The News
Rare are the people who have to deal with a 100% fatal disease that affects their child. Even rarer still are the people who are able to write a heart-felt book detailing the roller-coaster of emotions & experiences associated and also offer understanding & hope.
Misty VanderWeele is one of those people.
As the mother of a son born with Duchenne muscular dystrophy (DMD), Misty is doing what any mother would do – fighting for the life of her child. Misty is the author of “In Your Face: Duchenne Muscular Dystrophy…All Pain…All Glory“.
Please take just a moment of your time to and go to Misty’s website and pre-order her inspirational book.
Misty is kind enough to donate a portion of all proceeds from the book to Cure Duchenne for Research for a Cure!
Martin Family Featured on Local News
January 6, 2010 by CureDuchenne
Filed under Featured, In The News
Chris and Amy Martin were recently featured on CBS’s evening news highlighting their efforts to find a cure for Duchenne Muscular Dystrophy.
Watch the Video
Chris and Amy’s son, Will, has Duchenne Muscular Dystrophy (DMD).
In the interview, Chris states, “Action is Therapy”. As involved parents, they’ve been in charge of the Annual Celebrity Poker Tournament fundraisers held each year at the Petersen Automotive Museum in Los Angeles.
Stay tuned for more details about this year’s Celebrity Poker Tournament on June 12th.
Click here to read about the Martins as featured on CBS
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