Cure Duchenne to Host Inaugural Duchenne Muscular Dystrophy Summit
March 8, 2010 by CureDuchenne
Filed under Past Events
On March 19, 2010, CureDuchenne’s Scientific Advisors from around the country will come together in an unprecedented meeting to find a cure for Duchenne Muscular Dystrophy (DMD).
The group of ten includes world-class scientists coming together for the chance to sit with each other and share new strategies around finding a cure for DMD.
“We know that the path to a cure starts with collaboration,” said CureDuchenne co-founder Debra Miller. “By bringing together ten of the world’s most forward-thinking scientists, researchers and drug development experts in the field of DMD research, we hope to be able to best identify the strategy necessary to move treatment options into the human clinical trial stage. We’re racing the clock to save our boys, and if there ever was a group capable of finding a cure, it’s this one.”
10 Leading DMD Scientists from around the country together in one place to evaluate the most promising Duchenne research projects.
The inaugural DMD Summit will include these muscle disease and drug development experts:
- Barry Byrne, MD, PhD, University of Florida
- Jeffrey Chamberlain, PhD, University of Washington
- Kevin Campbell, PhD, University of Iowa
- Eric Hoffman, PhD, George Washington University School of Medicine
- Edward Kaye, MD, Genzyme
- Douglas Macdonald, PhD, CHDI Foundation, Inc.
- Carrie Miceli, PhD, UCLA
- Stanley Nelson, MD, UCLA
- Pier Lorenzo Puri, MD, PhD, The Burnham Institute
- Brian Tseng, MD, PhD, Harvard University and Massachusetts General Hospital
This group of scientists serves as our scientific advisory board and works with the org
anization to determine what projects around the world are closest to the human clinical trial phase and the most viable for funding. To date, CureDuchenne has provided millions of dollars in funding for DMD research around the world and has been integral in bringing 3 treatment options to the human clinical trial phase.
The DMD Summit will take place over the course of three days and will include closed session discussions, research project evaluation, and a breakfast event where each participant will report on the findings from the weekend.
The breakfast will be attended by DMD parents, advocates and supporters.
We want everyone who is interested in finding a cure to DMD to attend the Saturday morning breakfast where you can talk personally with these leading researchers. This is a rare chance to get to learn from the top minds all in one place!
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2010 Climb to Cure Duchenne Announced!
January 28, 2010 by Debra Miller
Filed under Blog, Past Events
This week CureDuchenne was very happy to announce our first “CureDuchenne Adventure,” the 2010 “Pick Your Peak.” Climbers from across the country will form teams and climb mountains, hills or hiking trails during the weekend of June 19-20 to raise awareness for Duchenne muscular dystrophy(DMD) and funds for DMD research.
Duchenne is the most lethal childhood genetic disease. In June, families and advocates will join together and shout from mountaintops across the country that DMD needs more attention and more funding for research. CureDuchenne will lead a national publicity campaign for this event and a mini-documentary will record and publicize the efforts of climbers across the country as they fight for their sons.
We are looking for 200 team captains to assemble teams which will each raise a total of $5,000. This means $1 million going directly to research that could potentially save the lives of thousands of boys now and into the future. CureDuchenne will make it really easy to set up your fundraising pages and help you promote your local climb.
Some climbers may desire to attack a major mountain like we did in 2009 when our team of 12 climbed Mt. Rainier. If you would like to target a major mountain, CureDuchenne can help you with the training and logistics. But remember, No mountain is too big or too small.
As one of the 2009 Mt. Rainier team, I can tell you that this was a life changing experience. The camaraderie we developed with our team and the sense of actively doing something that can help our boys was something I’ll never forget.
Please click on these videos to see learn more!
This Year’s 2010 Climb to Cure Duchenne Announcement:
Last Year’s 2009 Mt. Rainier Climb Mini-Documentary:
Here’s the link to sign up for the climb as a team captain or to find a team that’s being formed. We are happy to answer any questions you have.
See you on the mountain top!
Debra
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Vote for Coach Mack Brown!
November 9, 2009 by CureDuchenne
Filed under Past Events
Vote for Texas Longhorn Coach Mack Brown!
Texas Longhorns Head Coach Mack Brown is one of the candidates for Liberty Mutual’s “Coach of the Year” award. Mack is known for his high integrity, both on the field and off. He is loved and respected the world over.
Mack, and his wife Sally, are big supporters of Duchenne. In fact, they will be hosting a Cure Duchenne Fundraising event on May 1st next year in Austin, Texas to raise funds for Duchenne Muscular Dystrophy research! Their hearts are as big as Texas.
Because of his amazing generosity, we want to get as many people to vote for Coach Mack Brown as possible!
So click here to Vote for Coach Mack Brown as Coach of the Year!
http://www.coachoftheyear.com/
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