2011 Dealing for Duchenne Austin

September 29, 2010 by CureDuchenne  
Filed under Events

Please join us for the 2011 Dealing for Duchenne, hosted by Sally and Mack Brown in Austin, Texas on April 29th 2011. Please click here to watch the video.

2011 Dealing for Duchenne LA

September 29, 2010 by CureDuchenne  
Filed under Events

Please join us for the 2011 Dealing for Duchenne in Los Angeles on May 14, 2011. Click here to watch video.

CURE DUCHENNE ANNOUNCES THE 2011 TOUR DE CURE DUCHENNE

September 14, 2010 by CureDuchenne  
Filed under Events

Tour De Cure Duchenne
Corona del Mar, Calif. – September 13, 2010 – CureDuchenne, an Orange County-based nonprofit dedicated to finding a cure for Duchenne Muscular Dystrophy (DMD), today announced the 3rd annual Climb to CureDuchenne: Pick Your Peak and inaugural Tour de CureDuchenne as a part of their signature fundraising series, CureDuchenne Adventures. CureDuchenne Adventures will continue to engage thrill-seekers, adventurers, and ordinary people in activities ranging from mountaineering to cycling and other extraordinary adventures, all while raising life-saving funds and building awareness for DMD research.

Following the success of the 2009 Climb to Cure Duchenne and 2010 Climb to Cure Duchenne: Pick Your Peak – where groups of outdoor enthusiasts, philanthropists, families of boys with DMD, and DMD advocates climbed many of the US’s most well-known peaks, including Mt. Rainier, Mt. Shasta, Mt. Baldy, and Manitou Incline to raise awareness and more than $400,000 for DMD research – CureDuchenne is pleased to announce the 2011 Climb to CureDuchenne: Pick Your Peak. The 2011 climb is set to take place in June.

CureDuchenne Adventures aims to engage adventurers of all ages, skill levels and interests. As such, in addition to the 2011 climb, the nonprofit is announcing the 2011 Tour to CureDuchenne. This national event encourages bicyclists from around the country to organize friends and family and embark on bike rides of varying intensity. The event, set for September 2011 will kick off with team registration in October 2010.

“As parents of a child with DMD, we want to build upon the success of CureDuchenne Adventures in order to engage our supporters in any way possible,” said Debra Miller, CureDuchenne co-founder. “Aimed at showcasing ordinary people accomplishing extraordinary feats, we’ve added these two events to our 2011 plan to take extreme activities to new philanthropic heights”

Founded in 2003 by Miller and her husband Paul following the devastating diagnosis of their son at age five, CureDuchenne is a nonprofit organization that raises awareness and funds specifically aimed at finding a cure for DMD. As the leading genetic killer of young boys, this devastating disease affects more than 1 in 3,500 boys worldwide and is the most common and lethal form of Muscular Dystrophy.

Boys with DMD are usually diagnosed by the age of five, in a wheelchair by age 12, and may be completely paralyzed by their late teens. Historically, most patients with DMD do not live to see adulthood. Duchenne can occur in any family, from any race and from any background.

CureDuchenne is challenging Americans to dedicate their adventure-seeking activities to saving lives by participating in a CureDuchenne Adventure and raising funds for research projects happening around the world. Focused on getting the science out of the lab and into human trials, CureDuchenne Adventures directly funds some of the leading research for DMD patients. For example, at the organization’s 2011 Duchenne Muscular Dystrophy Summit taking place in January in Southern California, the scientific advisory board will identify the most promising leads. These projects, earmarked to receive CureDuchenne Adventure funding will be announced following the January 2011 summit.

For more information or to sign up for CureDuchenne Adventures updates, please visit www.cureduchenne.org or follow CureDuchenne Adventures on Twitter: @CDadventures.

About CureDuchenne
CureDuchenne is a nonprofit organization that raises awareness and funds specifically aimed at taking on Duchenne Muscular Dystrophy (DMD). By working closely with the world’s leading DMD scientists CureDuchenne works to determine the most viable research projects that will accelerate the clinical trial process and bring potential life saving drugs to help this generation of young boys living with the deadly disease.

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