CureDuchenne » Events

The Art of Giving: An Inclusive Charitible Event

CureDuchenne — Wed, 20 Oct 2010 22:09:36 +0000

Thursday October 21st there will be an art auction in Redondo Beach, CA. Auction item winners will be able to designate a donation to a designated charity. CureDuchenne is one of those charities. Please forward this to anyone in the the LA area that might be interested in a wonderful evening while helping fund a cure for DMD

Cadillac and CureDuchenne Team up for 2011 Super Bowl XLV

CureDuchenne — Fri, 08 Oct 2010 22:57:32 +0000

CADILLAC SELECTS CURE DUCHENNE AS 2011 SUPER BOWL
CHARITY PARTNER

CureDuchenne becomes the first Duchenne-specific organization to partner with major Fortune 500 company to raise funds and awareness for DMD

Corona del Mar, Calif. – October 8, 2010

Today, CureDuchenne announced that they have been selected as Cadillac’s 2011 Super Bowl Charity partner. This marks the first time one of America’s largest Fortune 500 companies will partner with a Duchenne Muscular Dystrophy-specific organization to join the fight in finding a cure. Cadillac’s parent company, General Motors, will serve as the official vehicle sponsor of the 2011 Super Bowl, set to take place at the Dallas Cowboy’s stadium in Arlington, TX on February 6, 2011. This partnership will serve as a turning point in creating change through fundraising and awareness for the Duchenne community.

Focused on getting the science out of the lab and into human trials, CureDuchenne was selected by Cadillac because of the organization’s commitment to finding a cure for DMD during the lifetime of this generation of boys. The details around the partnership and how interested parties can get involved will be announced on the CureDuchenne website (www.cureduchenne.org/cadillac) in the coming weeks, as well as on the Cadillac website www.cadillac.com.

“This is a game changer, pun intended,” said CureDuchenne co-founder and DMD parent Debra Miller. “We’re in a race against time to save our boys and having the backing of a company like GM and Cadillac provides us with an unparalleled awareness opportunity. We’re extremely grateful to have been selected and are honored to be able to say that the money raised through this effort will go directly to funding research headed into clinical trials – our best chance to finding a cure for this generation of boys.”

Chosen for their track record of turning research into promising human clinical trials, CureDuchenne will be recognized by Cadillac amongst General Motors’ other charity partners United Way and Make-A-Wish Foundation, selected by GMC and Chevrolet, respectively.

“CureDuchenne is an exceptional organization that upholds the values that distinguish the Cadillac brand – quality and advanced technology,” said Paul Edwards, Executive Director, Marketing Strategy at General Motors. “Partnering with CureDuchenne provides us with the opportunity to create real strides for the 20,000 boys living with DMD in this country. We couldn’t be more excited about the prospect of helping this organization and its community.”

Founded in 2003 by Debra Miller and her husband Paul following the diagnosis of their son at age five, CureDuchenne is a nonprofit organization that raises awareness and funds specifically aimed at finding a cure for DMD. As the leading genetic killer of young boys, this disease affects more than 1 in 3,500 boys worldwide and is the most common and lethal form of Muscular Dystrophy.

Boys with DMD are usually diagnosed by the age of five, in a wheelchair by age 12, and may be completely paralyzed by their late teens. Historically, most patients with DMD do not live to see adulthood. Duchenne can occur in any family, from any race and from any background.

For more information about the 2011 Super Bowl partnership, updates on sponsorship details and how to get involved with CureDuchenne, please call 949-872-2552 or visit www.cureduchenne.org or follow CureDuchenne on Twitter: @CureDuchenne.

About CureDuchenne

CureDuchenne is a nonprofit organization that raises awareness and funds specifically aimed at taking on Duchenne Muscular Dystrophy (DMD). By working closely with the world’s leading DMD scientists CureDuchenne works to determine the most viable research projects that will accelerate the clinical trial process and bring potential life saving drugs to help this generation of young boys living with the deadly disease.

About Cadillac

Cadillac has been a leading luxury auto brand since 1902. In recent years, Cadillac has engineered a historic renaissance led by artful engineering and advanced technology. More information on Cadillac can be found at media.cadillac.com.

Media Contact:
Jaclyn Anderson, The Fearey Group for CureDuchenne (206) 343-1543; janderson@feareygroup.com

Second Annual Golf Ball Drop and Fall Festival

CureDuchenne — Thu, 07 Oct 2010 19:30:13 +0000

Second Annual Golf Ball Drop and Fall Festival to Benefit Cure Duchenne

Saturday, October 16, 2010 – Rain or Shine

10:00 am to 5:00 pm

Quakertown Airport & Robert Fowler Aviation, Inc.

2425 Milford Square Pike

Quakertown, Pa 18951 (parking will be across from the airport)

Cure Duchenne is having a Golf Ball Drop (Drop for Duchenne) and Fall Festival to support Duchenne Muscular Dystrophy (DMD) research and education. We are families active in Pennsylvania because we have a son, relative or friend that has been diagnosed with Duchenne Muscular Dystrophy and have chosen to take a stand in the fight against DMD.

Numbered golf balls are being sold in advance of the event for $10.00 each. At 4:00pm all 2,000 balls will be lifted into the air and positioned over a whole in one and dropped. The first ball that lands in or closest to the hole wins first prize of $1,000.00. Should there be more than one ball that is closest to the hole the prize will be shared. Second prize will be $500.00, third, fourth, fifth, sixth, and seventh prizes will be $100.00 each.

There will be crafters/vendors, food and refreshments by the Milford Township Fire Company and the Quakertown Airport Café, Live Music and a DJ (come out between 1 – 3 for some Country Line Dancing), Antique Airplane Exhibit, Games for the kids, tons of Raffle Items, Face Painting and scarecrow making and pumpkin decorating contests with prizes.

AND LAST BUT NOT LEAST THE GOLF BALL DROP TO TOP OFF THE EVENT!!!!!!!!!

Donating auction items (goods or services)

Being a Sponsor to help with the costs of the event.
Attending the event to show your support.
Buying a ticket for the Drop and take a chance to win!

Call Donna Doyle at 215-345-7421, with any questions or if you would like to purchase tickets.

Numbered tickets will correspond to the numbers on the golf balls

Any vendors interested in participating, in lieu of a registration fee, we are requesting an item that can be included in the raffle.

Also, keep in mind – your gift is tax deductible. You will receive a donation letter from Cure Duchenne to be used for tax purposes.

For more information, please contact us.