Cure Duchenne to Host Inaugural Duchenne Muscular Dystrophy Summit
March 8, 2010 by CureDuchenne
Filed under Events
On March 19, 2010, CureDuchenne’s Scientific Advisors from around the country will come together in an unprecedented meeting to find a cure for Duchenne Muscular Dystrophy (DMD).
The group of ten includes world-class scientists coming together for the chance to sit with each other and share new strategies around finding a cure for DMD.
“We know that the path to a cure starts with collaboration,” said CureDuchenne co-founder Debra Miller. “By bringing together ten of the world’s most forward-thinking scientists, researchers and drug development experts in the field of DMD research, we hope to be able to best identify the strategy necessary to move treatment options into the human clinical trial stage. We’re racing the clock to save our boys, and if there ever was a group capable of finding a cure, it’s this one.”
10 Leading DMD Scientists from around the country together in one place to evaluate the most promising Duchenne research projects.
The inaugural DMD Summit will include these muscle disease and drug development experts:
- Barry Byrne, MD, PhD, University of Florida
- Jeffrey Chamberlain, PhD, University of Washington
- Kevin Campbell, PhD, University of Iowa
- Eric Hoffman, PhD, George Washington University School of Medicine
- Edward Kaye, MD, Genzyme
- Douglas Macdonald, PhD, CHDI Foundation, Inc.
- Carrie Miceli, PhD, UCLA
- Stanley Nelson, MD, UCLA
- Pier Lorenzo Puri, MD, PhD, The Burnham Institute
- Brian Tseng, MD, PhD, Harvard University and Massachusetts General Hospital
This group of scientists serves as our scientific advisory board and works with the org
anization to determine what projects around the world are closest to the human clinical trial phase and the most viable for funding. To date, CureDuchenne has provided millions of dollars in funding for DMD research around the world and has been integral in bringing 3 treatment options to the human clinical trial phase.
The DMD Summit will take place over the course of three days and will include closed session discussions, research project evaluation, and a breakfast event where each participant will report on the findings from the weekend.
The breakfast will be attended by DMD parents, advocates and supporters.
We want everyone who is interested in finding a cure to DMD to attend the Saturday morning breakfast where you can talk personally with these leading researchers. This is a rare chance to get to learn from the top minds all in one place!
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PTC Therapeutics and Genzyme Corporation Announce Preliminary Results from the Phase 2b Clinical Trial
March 3, 2010 by CureDuchenne
Filed under Research Articles
Please take some time to read this important announcement:
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Register for the 2010 Climb to Cure Duchenne: Pick Your Peak!
March 2, 2010 by CureDuchenne
Filed under Featured
WHAT: A coordinated nationwide climb from participants from all parts of the United States. The goal is that every team raises at least $5,000 that goes directly to research. We hope to have 50 to 200 teams. Just imagine $250,000 to a $1 million dollars going to find a cure for our boys!
WHERE: Nationwide! Teams from every state will be participating. As the title suggests, climbers will “pick their peak”, train, and then climb it!
WHO: You! Your friend! Your neighbor! Everyone and anyone who is interested in bringing a cure to Duchenne muscular dystrophy! Everyone can participate! Whether it’s a mountain, bluff, or skyscraper! Climb it!
WHEN: June 19th and 20th. Every climber around the country will be climbing on the same weekend! There will be power when we all climb together! Decide which day works best for you!
WHY: We are climbing to raise awareness and money to fund leading Duchenne muscular dystrophy (DMD) research. We are climbing for the boys that can’t.
HOW:
Step 1 – Click here to download your Team Captain Packet or Team Member Packet. (This gives you all the step by step details of what you need to know!)
Step 2 – Decide which peak you would like to climb. Pick whichever one you would like! If you need help knowing which peaks there are in your area, click on our list of peaks in the 50 states
Step 3 – Assemble your team. You can climb solo if you wish or put together a team – as many people as you want! The more people on a team the better – more awareness raised and it’s easier to raise money when working together!
Step 4 – Sign up using the form below. Enter your information below. If you have any questions, just contact Sean Marshall at 949-872-2552 or sean(at)cureduchenne.org
Step 5 – Start fundraising and start training!
