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  • Our Team 

    Debra Miller, President & CEO

    debra@cureduchenne.org

    Debra Miller co-founded CureDuchenne in 2003 with her husband, Paul, after their only son was diagnosed with Duchenne. Miller relies on her extensive background in sales and marketing to lead CureDuchenne.

    Her role includes overseeing all operations, research and financial resources as well as serving as the primary liaison to the Board of Directors. She is the decision maker, leader and manager in carrying out the mission of the organization. She also works closely with the Scientific Board of Advisors in designing and implementing the medical research strategic plan.

    Miller earned a Bachelor of Arts in Communication Studies from the University of California Los Angeles. Prior to CureDuchenne, she had a career in publishing with positions in advertising sales and was an independent stock trader.

    Michael Kelly, Chief Scientific Officer

    michael@cureduchenne.org

    Dr. Michael Kelly joined CureDuchenne in December 2011 as chief scientific officer. Kelly, a senior pharmaceutical executive, brings more than 25 years experience in drug discovery and development to the organization. He is responsible for advancing drug development programs and identifying new drug targets that exhibit potential to transform the treatment of Duchenne muscular dystrophy.

    Before joining CureDuchenne, Kelly served as president and U.S. site head of Renovis, Inc. and has held senior positions at Amgen, Inc., Wyeth (Pfizer) and Wellcome (GlaxoSmithKline).

    Kelly holds a Ph.D. from the University of Southampton (U.K.), held research positions at the University of Michigan and University of Nottingham, is an inventor on more than 100 patents and is widely published in peer reviewed journals.

    Karen Harley, Vice President of Marketing Communication

    karen@cureduchenne.org

    Karen Harley joined CureDuchenne in December 2011 as director of marketing communications. She has more than 20 years experience in public relations, social marketing and public education. She is responsible for marketing, communications, public relations, special events, website and building partnerships to help increase awareness about Duchenne muscular dystrophy and raise funds to find a cure for Duchenne.

    Before joining CureDuchenne, Harley was director at PainePR. Previously she was vice president of Hill & Knowlton. Harley has managed large-scale public education campaigns focused on obesity prevention, service and volunteering, teen pregnancy prevention, mentoring and disaster preparedness that helped drive behavior change. She has worked with a variety of clients in the public, private and nonprofit sector.

    Harley holds a bachelor of arts degree in English and psychology from Indiana University in Bloomington, Indiana.

    Drew Hoyer, Senior Director of Development

    drew@cureduchenne.org

    Drew Hoyer joined CureDuchenne in April 2013 as Senior Director of Development.  He is responsible for overseeing all fundraising and cause-related marketing efforts. His role includes donor stewardship, cause-related marketing initiatives, sponsorships and board development. He brings more than 7 years of experience in development, philanthropy and community relations to the organization.

    Drew was the Senior Director of Development for the Cystic Fibrosis Foundation Orange County Chapter.   Drew has managed large scale fundraising events for the CFF and worked with many families to help find a cure for CF.  He now brings this experience to CureDuchenne to help us reach our goal of a cure.

    Hoyer holds a bachelor's degree in Science and Youth Ministry from Martin Luther College.

    Heather Schuster, Database Manager

    heather@cureduchenne.org

    Prior to joining CureDuchenne in August 2012, Schuster was the Assistant Program Director at With Hope, the Amber Craig Memorial Foundation in Orange County. Schuster comes from an administrative and data entry background with a combined experience in social media and website content, event planning, and fundraising.

    Schuster is responsible for office operations, data entry, donor database/ CRM management and event coordination.   

    Schuster has a bachelors of science degree in human services from California State University, Fullerton.  

     

  • Recent Press 

    Local Bands Rockin' to CureDuchenne on June 2 to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy May 20, 2013

    Celebrities to Join 6th Annual Dealing for Duchenne Gala on May 11 April 29, 2013

    Jim Ruetz to Embark on the Cajun-Parrot Run, a 4,000-Mile Motorcycle Trip to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy April 25, 2013

    CureDuchenne Partners with French Researchers to Expand eDystrophin Database March 28, 2013

    Hockey Players Raise Funds to Find a Cure for Duchenne Muscular Dystrophy During Weekend Ice Duchenne Event to Benefit CureDuchenne February 20, 2013

    Champions to CureDuchenne Newport Beach Gala Raises $800,000 to Find a Cure for Duchenne Muscular Dystrophy February 14, 2013

    CureDuchenne Hosts Accelerated Access Webinar with the FDA February 14, 2013

    Dallas Sports Celebrities Are Bowling to CureDuchenne to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy February 1, 2013

    CureDuchenne To Auction Off Two Tickets to the Big Game in New Orleans January 19, 2013

    Champions to CureDuchenne Newport Beach Gala to Honor Scott and Lisa Niedermayer January 16, 2013

    2012 Press

    Duchenne Muscular Dystrophy is Closer to a Treatment with New Results from Sarepta Therapeutics, Cure Duchenne Early Supporter of Study October 3, 2012

    CureDuchenne Founder to Participate in Global Genes RARE Project Tribute to Champions Event, RARE Advocacy Summit and Documentary Screening September 27, 2012

    Anaheim Ducks Captain Ryan Getzlaf to Host 2nd Annual Getzlaf Golf Shootout This Weekend To Benefit Cure Duchenne September 5, 2012

    NHL All-Star Ryan Getzlaf to Host 2nd Annual Getzlaf Golf Shootout to Benefit CureDuchenne August 15, 2012

    CureDuchenne Supported Sarepta Therapeutics Research Study for the Treatment of Duchenne Muscular Dystrophy  July 24, 2012

    3rd Annual Strike Out Duchenne Wooden Bat Tournament to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy July 12, 2012

    Tyler Armstrong, 8, Summits Mount Kilimanjaro To Cure Duchenne Muscular Dystrophy July 2, 2012

    Community Members to Climb Mt. Rubidoux in Riverside to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy June 19, 2012

    Orange County Residents to Climb Quail Hill Trail to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy June 18, 2012

    2nd Annual Knoxville Brewfest to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy June 11, 2012

    Cure Duchenne is an Official Charity of the Run Disney Tinker Bell Half Marathon June 11, 2012

    Duchenne dads to climb tallest peak in the great Smoky Mountains to raise funds to find a cure for Duchenne Muscular Dystrophy  June 6, 2012

    Celebrities to participate in 5th annual Dealing for Duchenne charity poker tournament to raise funds to cure Duchenne Muscular Dystrophy May 29, 2012

    8-year-old to climb Mount Kilimanjaro to cure Duchenne Muscular Dystrophy.
    Help him raise $19,341 – a dollar for every foot he will climb
     May 22, 2012

    Sally and Mack Brown host 3rd Annual Champions to CureDuchenne Fundraiser at The University of Texas Golf Club April 24, 2012

    8-year-old to climb Mount Kilimanjaro to cure Duchenne Muscular Dystrophy March 14, 2012

    “I am a Duchnene dad” online community March 13, 2012

    Cure Duchenne announces three new funded research projects to help develop treatments and find a cure for Duchenne Muscular Dystrophy  February 21, 2012

    Champions to Cure Duchenne Newport Beach Gala to feature food from local celebrity chef Jason Quinn and honor Sage Hill football coach J.R. Tolver February 2, 2012

    Cure Duchenne launches online fundraising gift store in time for Valentine’s Day February 2, 2012

    Cure Duchenne launches ‘Text 2 Cure Duchenne’ campaign at style icon celebrity lounge at Super Bowl XLVI to raise $1 million February 1, 2012

    Cure Duchenne announces third annual scientific summit and worldwide webcast January 24, 2012

    2011 Press

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    Newport Beach, CA 92660
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CureDuchenne is a 501c3 registered tax-exempt nonprofit organization. Our federal tax ID number is: #20-0299958.
 
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