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2008 CureDuchenne Events
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6th Annual
Link Up & Listen Up for the Cure
701 Bunker Lake Blvd. NE
Ham Lake, MN 55304
Phone: (763) 755-2140
Saturday, August 2, 2008
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GOLF TOURNAMENT
(Price includes Golf, Cart, Range Balls, BBQ and Concert.)
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CATCHPENNY CONCERT
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Duchenne muscular dystrophy is the most lethal genetic disorder of children worldwide. The problem is, very few people know it.
One in every 3,500 boys suffer from this disorder ...and there is no cure. In addition, research for Duchenne is severely under-funded in comparison to other childhood disorders of less severity.
My friends, Paul and Debra Miller learned about this disorder the hard way. Their son Hawken was diagnosed with Duchenne at the age of six. Concerned by the inadequate international effort to identify a cure for this horrible disease, the Millers took action and founded CureDuchenne in 2003.
To date, CureDuchenne has raised approximately $2.5 million and participated in at least two Duchenne research "significant successes". Going forward, CureDuchenne stands strong and growing, poised to serve as a major contributor to the international effort to eliminate this disease.
Thanks to the compassion and generosity of friends, family and our Minnesota community, we're making a difference too. So Link Up, Listen Up, Cuddle Up, Fundraise or donate .... Because you're helping to get the word out. Every dollar collected today will help ensure that Duchenne boys have a "Chance for a Lifetime"!
Thank you Minnesota for showing you care!
Craig Urseth
CureDuchenne, Minnesota
Craig@CureDuchenne.org
(763) 300-8466
Please help us save THIS generation of boys
www.CureDuchenne.org
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Photos from Link Up/Listen Up for the Cure 2007
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