Meet the 2009 Climb to Cure Duchenne Team!
June 19, 2009 by CureDuchenne
Filed under Past Events
This year, CureDuchenne is excited to be involved with a truly remarkable event. A team of 12 will be climbing Mt. Rainier in Washington State to raise money and awareness to find a cure for Duchenne Muscular Dystrophy.
Meet the climbers here:
The worst words any parent can hear…your child has a terminal illness. Our son was diagnosed with DMD 7 years ago.
We founded CureDuchenne first to find a cure for our son…then for all the other boys we’d met…and now…we are determined to do everything in our power to save ALL boys with Duchenne…even climb a mountain.
Paul Miller, husband of Debra and father of our son. My career has been in the food industry, and my passion for the last 7 years has been working to find a cure for Duchenne muscular dystrophy.
Debra and I founded CureDuchenne in 2003. I prefer physical activity to anything else, and since I can’t do these physical activities with my son, I do them for my son.
Thomas Seoh, currently residing in Northern Virginia, came to know the Duchenne community while CEO of a French biotech company working on potential medicines for Parkinson’s and Duchenne.
He previously held senior management positions with biotech/pharmaceutical companies in Baltimore and Orange County, California, and practiced in the New York and London offices of a Wall Street law firm.
Bill Procko, a retired police officer-turned health club owner and his wife, Kimberly, reside in Florida with their two boys, Billy, 8, and Evan, 5.
In March 2008, Evan was diagnosed with Duchenne. Finding a cure for their son through fundraising has become focus of their lives. Bill dreamed up the Rainier “Climb to Cure Duchenne” while hiking last winter.
David Schultz, 33, father to an amazing little boy named Ryan who has DMD. He is my best friend and I will stop at no costs to do anything possible to raise money & awareness to fight this disease.
I’ve been looking to find something very different and unique to help heighten awareness and raise funding for DMD research, aside from the traditional fundraising ideas and this Climb was the way.
Zach Schauf, farm grown country boy from Wisconsin, now residing in Minneapolis. Came to know CureDuchenne through Paul and Debra Miller while performing at one of the first CureDuchenne events in 2003.
Zach is a musician and also works for the Department of Defense, helping to provide musical entertainment for our troops stationed in the Middle East.
My name is Barry Byrne and I am a clinician-scientist working on inherited muscle disease with a focus on those conditions which affect heart and skeletal muscle.
I’m grateful to be included in the group and hope the contributions from the medical and scientific community will represent the enthusiasm which my colleagues have for successful gene therapy in Muscular Dystrophy.
Michael Tucker, 33, is a media producer living in Manhattan Beach, CA. After a successful career in the music business, he is now focused on creating content that spans across all forms of media.
His passions include rock-climbing, traveling, food, and pretty much anything to do with the outdoors.
Christian Schauf, 28, of Minneapolis, MN is singer and songwriter for Catchpenny. After writing “Chance for a Lifetime”, and performing at many CureDuchenne events, recording a music video and PSA, the Mt. Rainer climb was just too much to pass up for this athlete.
Between his work with Catchpenny, his production company Trovata Entertainment, his job as Digital Scout for Minneapolis ad agency Periscope, and his overseas tours performing for the troops, Christian has been training, along with brother Zachary, with Minnesota Wild head strength coach Kirk Olson in preparation of the climb. ”We’re going to be ready to do this in honor of all of those kids who can’t climb. I’m looking forward to the challenge.”
I am Mindy Cameron and my son Christopher has Duchenne Muscular Dystrophy. Climbing Mt. Rainier is scary but not nearly as scary as Christopher’s prognosis if treatments and therapies are not found.
This climb is my way of shouting from the rooftops about Duchenne and the promising research that could save thousands of lives if it is properly funded NOW.
My name is Tom and I’m excited to be part of the Climb to Cure Duchenne. I was involved in raising funds for MDA in college and am ready to help again. I know it will be an arduous journey but not nearly as difficult as coping with DMD.
I am an avid surfer. The only thing I love more than surfing are my friends and family and my awesome wife Marra.
Sean Marshall, 31, grew up in Seattle in the shadow of Mt. Rainier. Now, as part of the Climb to Cure Duchenne Team, he’ll go back to his roots and climb for an amazing cause.
“When I first started working with Cure Duchenne, I was honored to be part of a bigger cause. Now, for the chance to climb for those who can’t and to get one step closer to a cure, makes for a truly remarkable journey!”
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As you can tell, we’ve got a great team assembled. To learn more about the event, click here
If you would like to donate either click on our “Donate” button or click here to go to our main FirstGiving web page
Sponsor Opportunity
If you represent a company or organization and would like to sponsor our event, please contact Sean Marshall at 949-872-2552 or sean (at) cureduchenne.org for details. All corporate sponsors will be given massive media exposure including summit photo opp with your company logo.
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Related posts:
- DMD Mom Mindy Cameron and Her Climb Team Make the News Again Mindy Cameron, a mother of a boy with Duchenne muscular...
- Announcing the 2010 Climb to Cure Duchenne: Pick Your Peak The 2009 Climb to Cure Duchenne was very successful in every...
- 2010 Climb to Cure Duchenne: A Message from Cure Duchenne Founder, Debra Miller This week CureDuchenne was very happy to announce our first...
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Good luck team. You’ll make it to the top.
I climb for my grandson who has Angelman’s Syndrome. You can see photos of him on my website under “My Training Partner.”
Sharon and I made a donation.
God bless you and your precious sons.
Bill & Sharon Burke
Costa Mesa, Ca.